• Public Foundations

• 235.

BARTH SYNDROME FOUNDATION INC

Barth Syndrome Foundation - saving lives through education, advances in treatments, and finding a cure for Barth syndrome.

WOBBLY FEET FOUNDATION INC

WFF promotes awareness of A-T and contributes to advancement in life improving therapies & a cure.

Rett Syndrome Research Trust, Inc.

Fighting to cure Rett Syndrome and MECP2 related disorders.

Cure SMA

Funding groundbreaking research for SMA.

• Research Institutes and/or Public Policy Analysis

• 239.

Consilium Scientific Us Inc

Patients deserve better clinical research Consilium Scientific is an independent nonprofit organisation aiming to improve clinical research through scientific rigour and transparency UPCOMING EVENTS and NEWS Sign up Sign up Learn More Learn More Visit Read OUR PURPOSE Create a platform for initiatives and individuals to collaborate in improving the quality of clinical research Drive change in attitudes and practice in clinical research through education and advocacy Campaign for policy changes that will increase the value of clinical research for patients and society Consilium wins NIHR grant to lead the RareCare project BOARD OF TRUSTEES Eric Low OBE John HickmanDSc Sir Andrew Dillon Dr.

• Nerve, Muscle, and Bone Diseases

• 240.

Walking Strong, Inc.

Walking Strong is committed to supporting Duchenne families in need and creating a community while funding groundbreaking scientific research.

• Birth Defects, Genetic Diseases

• 241.

Clubfoot Research Foundation

The Clubfoot Research Foundation was founded by patient families for patient families and our mission is to educate and support all touched by CLUBFOOT/CTEV, and to sponsor or support new genetic research in order to increase therapy options and improve patient quality of life.

The Vision of Children Foundation

Dedicated to finding a cure for hereditary childhood blindness and vision disorders.

• Single Organization Support

• 243.

THE MED13L FOUNDATION INC

Supporting MED13L families through awareness, research, and community.