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Similar organisations to Dion Foundation for Children with Rare Diseases Inc

Community Rebuilding
  • Birth Defects, Genetic Diseases

  • 190.

Regenerative Medicine Foundation Inc

Official account of Regenerative Medicine Foundation, hosts of The World Stem Cell Summit - the world's flagship stem cell & biotech event.

Social Rank

16873

Location

Wellington

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Community Rebuilding
  • Fund Raising and/or Fund Distribution

  • 191.

Birds for Sofia Inc

We support children diagnosed with rare, inheritable diseases from Eastern Europe.

Location

Salt Lake City

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Community Rebuilding
  • Management & Technical Assistance

  • 192.

Pathways Corp

To elevate the patient's voice to increase access to care and eliminate bias by bringing stakeholders together Home Our Team Events Initiatives Partners Media Kit Contact More Its Time to Listen to the Rare Disease Community.

Location

Mendham

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Community Rebuilding
  • Fund Raising and/or Fund Distribution

  • 193.

Finns Friends

Providing Family Assistance to families affected by Duchenne Muscular Dystrophy.

Social Rank

1900

Location

Longview

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Community Rebuilding
  • Geriatrics

  • 194.

Acgene Lab A California Nonprofit Organization

ACGENE Lab NonProfit Research Organization ACGENE Lab NonProfitBiological Research Laboratory We are researching humaninduced Pluripotent Stem Cell hiPSC and the most advanced geneediting technology.

Location

Irvine

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Community Rebuilding
  • Birth Defects, Genetic Diseases

  • 195.

n-Lorem Foundation

Discovering, developing, and providing personalized experimental ASO medicines to treat nano-rare patients — for free, for life Creating a better future for nano-rare, one patient at a time.

Social Rank

1594

Location

Carlsbad

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Community Rebuilding

SPINAL MUSCULAR ATROPHY RESEARCH TEAM

Friends and Family Fighting for a cure for SMA and other Neuromuscular Diseases.

Social Rank

1315

Location

LACKAWANNA

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Community Rebuilding
  • Fund Raising and/or Fund Distribution

  • 197.

THE YAYA FOUNDATION FOR 4H LEUKODYSTOPHY

Fighting for children and families affected by 4H Leukodystrophy.

Social Rank

889

Location

MINNEAPOLIS

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Community Rebuilding

AMERICAN ASSOC OF NEUROMUSCULAR &

Our over 7,500 members--primarily neurologists and physical medicine and rehabilitation physicians -work to improve the quality of care provided to patients with muscle and nerve disorders.

Social Rank

4044

Location

ROCHESTER

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