• Alliance/Advocacy Organizations

• 190.

Team Telomere

An international community for telomere biology disorders.

• International Relief

• 191.

Glycosyn Health Initiatives Inc

GYLCOSYN HEALTH INITIATIVES, INC IS A BIOTECHNOLOGY THERAPEUTICS AND DIAGNOSTICS ORGANIZATION, DEDICATED TO IMPLEMENTING NEW TREATMENTS AND TECHNOLOGIES TO REDUCE THE IMPACT OF INFANT AND CHILDHOOD DISEASES WORLDWIDE, THE PRIMARY CAUSE OF MORBIDITY AND MORTALITY AMONG CHILDREN IN THIRD WORLD COUNTRIES.

• Professional Societies & Associations

• 192.

Friends of the Goldlab Symposium

Videos from the 2015 GoldLab Symposium are now online.

• Specifically Named Diseases

• 193.

Pmd Foundation A New Jersey Non Profit Corporation

#Research #Awareness #Advocacy & #FamilySupport for those with #PelizaeusMerzbacherDisease #PMD #newbornscreening #raredisease #leukodystrophy #myelin The PMD Foundation is a 501(c)3 non-profit organization formed to serve three distinct interest groups as they relate to Pelizaeus-Merzbacher Disease: The Children and Families, the General Public, the Researchers and Clinicians.

• Specifically Named Diseases Research

• 194.

Sleep Consortium

Sleep Consortium accelerates next-generation research and therapy development for Central Disorders of Hypersomnolence through a data collection ecosystem.

• Diseases, Disorders, Medical Disciplines N.E.C.

• 195.

Rare Genes Movement

Our vision is to see every child have access to proper medical, therapeutic, and educational resourc Our purpose is to raise awareness and funds to help families of children with rare genetic disorder.

• Health - General & Rehabilitative N.E.C.

• 196.

4P-Support Group

Our mission is to serve our membership by providing information, education and support; uniting families, researchers, and professionals; and promoting awareness and understanding of 4p- syndrome, with Wolf-Hirschhorn Syndrome as the main condition, and the related 4th chromosome abnormalities.

CHILDREN'S CANCER CENTER INC

HELPING CHILDREN & FAMILIES COPE. We provide the support needed for families during their battle Helping Children Families Cope The Childrens Cancer Center is a nonprofit organization dedicated to serving children and their families who are battling pediatric cancer or chronic blood disorders with the emotional financial and educational support necessary to cope with their lifethreatening illness.

• Cancer

• 198.

ALIVEANDKICKN

Home What is Lynch Syndrome Education Advocacy Resources Donate Headlines About More Check out the Lynch syndrome awareness day social media toolkits AliveandKick39n LIVING WITH LYNCH SYNDROME what is lynch syndrome.