Similar organisations to GALACTOSEMIA FOUNDATION
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Fund Raising and/or Fund Distribution
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208.
Forest Hills Educational Foundation
The European Network of Patient Organizations for inherited lipid conditions #FindFH #FindHoFH #FindLpa #FindFCS Working together to provide a stronger future for individuals and families with FH and other forms of inherited/genetic dislipidemias.
2820
Foundation for Angelman Syndrome Therapeutics
FAST is the premier patient advocacy organization working to cure Angelman syndrome.
AUSTIN
NATIONAL GAUCHER FOUNDATION INC
The National Gaucher Foundation (NGF) is an independent nonprofit serving U.
3000
Rockville
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Fund Raising and/or Fund Distribution
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211.
I Am Type 3 Inc
Does someone you love have diabetes. Then you're type 3.
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New York City
Cure Pogz Disorders Foundation Inc
The ‘Cure Pogz Disorders Foundation’ ( CPDF) Mission is to urgently improve the lives of individuals and families affected by POGZ gene disorders by funding and accelerating cutting-edge science to discover treatments integral to our Path to Cure.
Schaumburg
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Medical Specialty Research
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213.
Curemapk8Ip3 Foundation
Family support network for patients and their families affected by a gene mutation in MAPK8IP3 Page for individuals and families with gene variant MAPK8IP3 Improve the lives of patients and families affected by a MAPK8IP3 gene mutation by performing the following activities: raising community awareness of MAPK8IP3-Related Neurodevelopmental Disorder; facilitating research of MAPK8IP3-Related Neurodevelopmental and related Disorders; collecting and disseminating information and resources relating to MAPK8IP3-Related Neurodevelopmental and related Disorders; supporting those affected by MAPK8IP3-Related Neurodevelopmental and related Disorders; and any other charitable educational or scientific activities that are in furtherance of the Corporation's purposes.
85
Fort Mill
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Fund Raising and/or Fund Distribution
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215.
DHPS FOUNDATION
Leading the way in DHPS Deficiency Disorder research and education in order to find treatment, and a cure #curedhps #raredisease Our genetics make us unique our struggles and triumphs unite us.
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RESTON
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Specifically Named Diseases
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216.
THRIVE WITH PYRUVATE KINASE DEFICIENCY ORGANIZATION
Thrive with Pyruvate Kinase Deficiency Organization connects treatment support, increased social awareness and advocacy to communities affected by PK deficiency.
242
Bloomington






