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Similar organisations to GALACTOSEMIA FOUNDATION

Community Rebuilding
  • Fund Raising and/or Fund Distribution

  • 208.

Forest Hills Educational Foundation

The European Network of Patient Organizations for inherited lipid conditions #FindFH #FindHoFH #FindLpa #FindFCS Working together to provide a stronger future for individuals and families with FH and other forms of inherited/genetic dislipidemias.

Social Rank

2820

Location

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Community Rebuilding

Foundation for Angelman Syndrome Therapeutics

FAST is the premier patient advocacy organization working to cure Angelman syndrome.

Location

AUSTIN

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Community Rebuilding

NATIONAL GAUCHER FOUNDATION INC

The National Gaucher Foundation (NGF) is an independent nonprofit serving U.

Social Rank

3000

Location

Rockville

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Community Rebuilding
  • Fund Raising and/or Fund Distribution

  • 211.

I Am Type 3 Inc

Does someone you love have diabetes. Then you're type 3.

Social Rank

249

Location

New York City

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Community Rebuilding

Cure Pogz Disorders Foundation Inc

The ‘Cure Pogz Disorders Foundation’ ( CPDF) Mission is to urgently improve the lives of individuals and families affected by POGZ gene disorders by funding and accelerating cutting-edge science to discover treatments integral to our Path to Cure.

Location

Schaumburg

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Community Rebuilding
  • Medical Specialty Research

  • 213.

Curemapk8Ip3 Foundation

Family support network for patients and their families affected by a gene mutation in MAPK8IP3 Page for individuals and families with gene variant MAPK8IP3 Improve the lives of patients and families affected by a MAPK8IP3 gene mutation by performing the following activities: raising community awareness of MAPK8IP3-Related Neurodevelopmental Disorder; facilitating research of MAPK8IP3-Related Neurodevelopmental and related Disorders; collecting and disseminating information and resources relating to MAPK8IP3-Related Neurodevelopmental and related Disorders; supporting those affected by MAPK8IP3-Related Neurodevelopmental and related Disorders; and any other charitable educational or scientific activities that are in furtherance of the Corporation's purposes.

Social Rank

85

Location

Fort Mill

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Community Rebuilding

DCM Foundation

Hope for People with Dilated Cardiomyopathy.

Social Rank

1887

Location

Dublin

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Community Rebuilding
  • Fund Raising and/or Fund Distribution

  • 215.

DHPS FOUNDATION

Leading the way in DHPS Deficiency Disorder research and education in order to find treatment, and a cure #curedhps #raredisease Our genetics make us unique our struggles and triumphs unite us.

Social Rank

98

Location

RESTON

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Community Rebuilding
  • Specifically Named Diseases

  • 216.

THRIVE WITH PYRUVATE KINASE DEFICIENCY ORGANIZATION

Thrive with Pyruvate Kinase Deficiency Organization connects treatment support, increased social awareness and advocacy to communities affected by PK deficiency.

Social Rank

242

Location

Bloomington

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