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Similar organisations to International Pnh Interest Group

Community Rebuilding
  • Blood Supply Related

  • 19.

The Society for the Advancement of Blood Management

Society for the Advancement of Patient Blood Management's mission is to improve health outcomes by advancing comprehensive patient blood management practices.

Social Rank

2746

Location

Mt Royal

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Community Rebuilding

PROPIONIC ACIDEMIA FOUNDATION

Finding better treatments and a cure for Propionic Acidemia since 2003 The Propionic Acidemia Foundation is a 501(c)3 non-profit organization dedicated to finding improved treatments and a cure for Propionic Acidemia by funding research and providing information and support to families and medical professionals.

Social Rank

8

Location

Deerfield

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Community Rebuilding

Society for Leukocyte Biology

SLB promotes research and encourages young investigators to improve current understanding of the importance of leukocyte biology in disease.

Social Rank

2595

Location

Silver Spring

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Community Rebuilding

The Global Foundation for Peroxisomal Disorders

The GFPD's mission is to improve the lives of individuals with peroxisomal disorders by funding research, championing scientific collaboration, and empowering families and professionals through educational programs and support services.

Social Rank

3600

Location

Tulsa

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Community Rebuilding
  • Alliance/Advocacy Organizations

  • 23.

Ipex Foundation

The IPEX Foundation’s purpose is to improve the treatment, quality of life and the long term outlook for children and adults living with IPEX syndrome through research, support, education and advocacy to families and patients.

Location

Millstadt

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Community Rebuilding
  • Fund Raising and/or Fund Distribution

  • 24.

DHPS FOUNDATION

Leading the way in DHPS Deficiency Disorder research and education in order to find treatment, and a cure #curedhps #raredisease Our genetics make us unique our struggles and triumphs unite us.

Social Rank

98

Location

RESTON

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Community Rebuilding
  • Specifically Named Diseases

  • 25.

FOUNDATION FOR PRADER-WILLI

Foundation for Prader-Willi Research focused on treatments & cure for PWS Our Research FPWRs research programs aim to develop new therapies that will improve the health and wellbeing of those with PWS.

Social Rank

2031

Location

COVINA

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Community Rebuilding
  • Specifically Named Diseases

  • 26.

NATIONAL NEUTROPENIA NETWORK INC

Donate Now Find Hope in CommunityWere here to listen help Reduced or absent neutrophils characterize the rare blood condition neutropenia.

Location

CINCINNATI

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Community Rebuilding
  • Specifically Named Diseases

  • 27.

THRIVE WITH PYRUVATE KINASE DEFICIENCY ORGANIZATION

Thrive with Pyruvate Kinase Deficiency Organization connects treatment support, increased social awareness and advocacy to communities affected by PK deficiency.

Social Rank

242

Location

Bloomington

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