Similar organisations to International Pnh Interest Group
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Blood Supply Related
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19.
The Society for the Advancement of Blood Management
Society for the Advancement of Patient Blood Management's mission is to improve health outcomes by advancing comprehensive patient blood management practices.
2746
Mt Royal
PROPIONIC ACIDEMIA FOUNDATION
Finding better treatments and a cure for Propionic Acidemia since 2003 The Propionic Acidemia Foundation is a 501(c)3 non-profit organization dedicated to finding improved treatments and a cure for Propionic Acidemia by funding research and providing information and support to families and medical professionals.
8
Deerfield
Society for Leukocyte Biology
SLB promotes research and encourages young investigators to improve current understanding of the importance of leukocyte biology in disease.
2595
Silver Spring
The Global Foundation for Peroxisomal Disorders
The GFPD's mission is to improve the lives of individuals with peroxisomal disorders by funding research, championing scientific collaboration, and empowering families and professionals through educational programs and support services.
3600
Tulsa
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Alliance/Advocacy Organizations
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23.
Ipex Foundation
The IPEX Foundation’s purpose is to improve the treatment, quality of life and the long term outlook for children and adults living with IPEX syndrome through research, support, education and advocacy to families and patients.
Millstadt
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Fund Raising and/or Fund Distribution
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24.
DHPS FOUNDATION
Leading the way in DHPS Deficiency Disorder research and education in order to find treatment, and a cure #curedhps #raredisease Our genetics make us unique our struggles and triumphs unite us.
98
RESTON
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Specifically Named Diseases
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25.
FOUNDATION FOR PRADER-WILLI
Foundation for Prader-Willi Research focused on treatments & cure for PWS Our Research FPWRs research programs aim to develop new therapies that will improve the health and wellbeing of those with PWS.
2031
COVINA
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Specifically Named Diseases
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26.
NATIONAL NEUTROPENIA NETWORK INC
Donate Now Find Hope in CommunityWere here to listen help Reduced or absent neutrophils characterize the rare blood condition neutropenia.
CINCINNATI
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Specifically Named Diseases
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27.
THRIVE WITH PYRUVATE KINASE DEFICIENCY ORGANIZATION
Thrive with Pyruvate Kinase Deficiency Organization connects treatment support, increased social awareness and advocacy to communities affected by PK deficiency.
242
Bloomington





