Foundation for Angelman Syndrome Therapeutics

FAST is the premier patient advocacy organization working to cure Angelman syndrome.

• Diseases, Disorders, Medical Disciplines N.E.C.

• 20.

Grady M Salguero 11Q Foundation Inc

The THE GRADY M. SALGUERO 11 Q FOUNDATION, INC.

• Eye Diseases, Blindness & Vision Impairment

• 21.

BCM FAMILIES FOUNDATION

To eradicate Blue Cone Monochromacy (BCM), to provide financial support for research, projects, activities and organizations related to the diagnosis, treatment and/or cure of Blue Cone Monochromacy ("BCM"),to establish networks and synergies with other groups and organizations dedicated to eye and/or other rare disease issues, to make support and resources available to BCM patients and their involved families, and to educate the general public regarding BCM.

Cure KCNH1 Foundation

Cure KCNH1 Foundation is dedicated to advancing the development of treatments for children with KCNH1 genetic disorders.

Kruzn for A Kure Foundation

Kruzn For A Kure Foundation is a non-profit organization funding research for an extremely rare genetic disease & fatal type of dwarfism, #SIOD.

• Birth Defects, Genetic Diseases Research

• 24.

Alstrom Angels Corp

www. alstromangels. org Dedicated to raising funds for Alstrom Syndrome genetic and medical research, increasing awareness of the rare disease among the general public and medical communities, and improving family support for those affected by the Syndrome.

• Alliance/Advocacy Organizations

• 25.

Finding Nori Foundation

The Finding Nori Foundation Home About Meet the Team Finding Joy Blog Resources Publications DONATE Contact Upcoming Events More Raising research funding for PAX5 and ALG13 related neurological disordersEmpowering families with ultra rare undiagnosed diseases to find answers Our Mission Our mission is to advance scientific research through fundraising and advocacy for ultra rare undiagnosed genetic disorders.

• Birth Defects, Genetic Diseases

• 26.

Mitchell and Friends Foundation

To raise awareness of Mitchell Syndrome and support research into possible treatments and cures Raising awareness of Mitchell Syndrome and supporting families and children with this rare neurological disease.

• Fund Raising and/or Fund Distribution

• 27.

Believe in A Cure, Inc.

Believe in a Cure, Inc. is a 501(c)(3) tax-exempt organization whose mission is to: (1) support the care and treatment of individuals diagnosed with FOXG1 Syndrome and similar disorders, as well as to raise public awareness regarding such issues; and (2) support research and development of learnings and methods to improve the qualify of life for patients with such disorders.