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Similar organisations to International Pnh Interest Group

Community Rebuilding
  • Diseases, Disorders, Medical Disciplines N.E.C.

  • 163.

Society for Biopsychosocial Science and Medicine Inc

TO ADVANCE AND INTEGRATE THE SCIENTIFIC STUDY OF BIOLOGICAL, PSYCHOLOGICAL, BEHAVIORAL AND SOCIAL FACTORS IN HEALTH AND DISEASE.

Location

Mc Lean

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Community Rebuilding
  • Birth Defects, Genetic Diseases

  • 164.

Minnesota Pku Foundation

The Minnesota PKU Foundation is a non-profit organization dedicated to support for individuals and f To raise awareness and to fund reasearch for PKU in Minnesota.

Social Rank

457

Location

Gibbon

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Community Rebuilding
  • Fund Raising and/or Fund Distribution

  • 165.

Dravet Syndrome Foundation, Inc.

The mission of DSF is to raise funds for research into Dravet syndrome and related epilepsies, while offering support to patients and families.

Social Rank

18554

Location

Cherry Hill

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Community Rebuilding

Leukemia Research Foundation of Delaware

Our mission is to provide ongoing funding to support cutting edge blood cancer research while actively advocating for advanced therapies and patient care.

Social Rank

1100

Location

New Caslte

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Community Rebuilding
  • Specifically Named Diseases

  • 167.

Inspire Hope Foundation for Urea Cycle Disorders Inc

We are excited to introduce the Inspire Hope Foundation for Urea Cycle Disorders, Inc.

Social Rank

290

Location

Braintree

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Community Rebuilding
  • Diseases, Disorders, Medical Disciplines N.E.C.

  • 168.

National Niemann-Pick Disease Foundation

National Niemann-Pick Disease Foundation The NNPDF offers support and guidance to families and patients of those affected by Niemann-Pick Dise Mission: We are a non-profit group dedicated to supporting and empowering patients and families affected by Niemann-Pick disease through education, collaboration and research.

Social Rank

1482

Location

Fort Atkinson

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Community Rebuilding
  • Fund Raising and/or Fund Distribution

  • 169.

Sdhb Coalition Inc

Our mission is to educate healthcare professionals and patients on the SDHB genetic germline mutation as well as its role and impact in this orphan disease SEE SCHEDULE O ABOVE Vision Mission Our mission is to educate healthcare professionals and patients on the SDHB genetic germline mutation as well as its role and impact in this orphan disease namely Pheochromocytoma and Paraganglioma.

Social Rank

501

Location

Doylestown

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Community Rebuilding
  • Fund Raising and/or Fund Distribution

  • 170.

COALITION TO CURE CHD2 INC

Fighting for our kiddos, and others, with CHD2-related neurodevelopmental disorders.

Social Rank

586

Location

Dallas

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Community Rebuilding
  • Other Medical Research N.E.C.

  • 171.

The Human Anatomy Project Corporation

The Human Anatomy Project is a promising approach for achieving precision medicine.

Social Rank

63

Location

Tustin

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