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Similar organisations to International Pnh Interest Group

Community Rebuilding
  • Cancer Research

  • 154.

John Happy Cll Research Foundation

Main page About Our Foundation About our Scientific Advisory Board Scientific Advisory Board Members Message from our President Useful Links About CLL Bulletin Board How You Can Help Contact us Chronic lymphocytic leukemia CLL is the most common form of leukemia in the Western Hemisphere and accounts for nearly 30 of all reported leukemias.

Location

Denville

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Community Rebuilding

THE CLINIC FOR SPECIAL CHILDREN INC

A nonprofit comprehensive medical practice focused on treating & researching rare genetic disorders.

Social Rank

3100

Location

Intercourse

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Community Rebuilding
  • Fund Raising and/or Fund Distribution

  • 156.

RARE GENOMICS INSTITUTE INC

RGI is a non-profit organization that provides research to families in need of diagnosis & treatment for rare genetic diseases.

Social Rank

13311

Location

Los Angeles

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Community Rebuilding

Cure LBSL

LBSL is a degenerative brain/spinal cord disease.

Social Rank

2400

Location

ARLINGTON

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Community Rebuilding
  • Health Support Services

  • 158.

Pharmaceutical Research and Manufacturers of America Fnd Inc

The PhRMA Foundation supports early-career researchers by awarding them competitive fellowships and grants.

Social Rank

2046

Location

Washington

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Community Rebuilding
  • Specifically Named Diseases

  • 159.

SETBP1 Society

President of SETBP1 Society and Parent Advocate for SETBP1-HD SETPB1 Society's mission is to provide support to individuals with SETBP1 haploinsufficiency disorde Our Mission is to provide support to individuals with SETBP1 disorder and their families, to promote discussion and fund research, and to bring awareness and education to the public.

Social Rank

1141

Location

Austin

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Community Rebuilding

Cure Pogz Disorders Foundation Inc

The ‘Cure Pogz Disorders Foundation’ ( CPDF) Mission is to urgently improve the lives of individuals and families affected by POGZ gene disorders by funding and accelerating cutting-edge science to discover treatments integral to our Path to Cure.

Location

Schaumburg

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Community Rebuilding
  • Alliance/Advocacy Organizations

  • 161.

Finding Nori Foundation

The Finding Nori Foundation Home About Meet the Team Finding Joy Blog Resources Publications DONATE Contact Upcoming Events More Raising research funding for PAX5 and ALG13 related neurological disordersEmpowering families with ultra rare undiagnosed diseases to find answers Our Mission Our mission is to advance scientific research through fundraising and advocacy for ultra rare undiagnosed genetic disorders.

Location

Gilbert

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Community Rebuilding
  • Professional Societies & Associations

  • 162.

INTERNATIONAL SOCIETY OF NEPHROLOGY

The International Society of Nephrology is a global professional association dedicated to advancing worldwide kidney health.

Social Rank

52134

Location

CRANFORD

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