Similar organisations to International Pnh Interest Group
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Cancer Research
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154.
John Happy Cll Research Foundation
Main page About Our Foundation About our Scientific Advisory Board Scientific Advisory Board Members Message from our President Useful Links About CLL Bulletin Board How You Can Help Contact us Chronic lymphocytic leukemia CLL is the most common form of leukemia in the Western Hemisphere and accounts for nearly 30 of all reported leukemias.
Denville
THE CLINIC FOR SPECIAL CHILDREN INC
A nonprofit comprehensive medical practice focused on treating & researching rare genetic disorders.
3100
Intercourse
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Fund Raising and/or Fund Distribution
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156.
RARE GENOMICS INSTITUTE INC
RGI is a non-profit organization that provides research to families in need of diagnosis & treatment for rare genetic diseases.
13311
Los Angeles
Cure LBSL
LBSL is a degenerative brain/spinal cord disease.
2400
ARLINGTON
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Health Support Services
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158.
Pharmaceutical Research and Manufacturers of America Fnd Inc
The PhRMA Foundation supports early-career researchers by awarding them competitive fellowships and grants.
2046
Washington
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Specifically Named Diseases
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159.
SETBP1 Society
President of SETBP1 Society and Parent Advocate for SETBP1-HD SETPB1 Society's mission is to provide support to individuals with SETBP1 haploinsufficiency disorde Our Mission is to provide support to individuals with SETBP1 disorder and their families, to promote discussion and fund research, and to bring awareness and education to the public.
1141
Austin
Cure Pogz Disorders Foundation Inc
The ‘Cure Pogz Disorders Foundation’ ( CPDF) Mission is to urgently improve the lives of individuals and families affected by POGZ gene disorders by funding and accelerating cutting-edge science to discover treatments integral to our Path to Cure.
Schaumburg
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Alliance/Advocacy Organizations
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161.
Finding Nori Foundation
The Finding Nori Foundation Home About Meet the Team Finding Joy Blog Resources Publications DONATE Contact Upcoming Events More Raising research funding for PAX5 and ALG13 related neurological disordersEmpowering families with ultra rare undiagnosed diseases to find answers Our Mission Our mission is to advance scientific research through fundraising and advocacy for ultra rare undiagnosed genetic disorders.
Gilbert
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Professional Societies & Associations
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162.
INTERNATIONAL SOCIETY OF NEPHROLOGY
The International Society of Nephrology is a global professional association dedicated to advancing worldwide kidney health.
52134
CRANFORD





