Canavan Foundation, Inc.

CANAVAN FOUNDATION Preventing Childhood Genetic Disease Through Education We have a blog.

• Private Operating Foundations

• 164.

DEATER FOUNDATION INC

Deater Foundation Inc. works to provide funding and support for medical research on HSAN1, a hereditary sensory neuropathy, with the goal of advancing understanding, awareness and helping to bring about a potential treatment/cure for this disease.

Center for Ehlers Danlos Syndrome Alliance Inc

Proudly helping those who have EDS and bring awareness to the condition.

GiGi's Playhouse Buffalo

GiGi's Playhouse - Down Syndrome Achievement Centers.

• Alliance/Advocacy Organizations

• 167.

Trpm3 Foundation

Patient advocacy and support for those affected by #TRPM3 #ionchannel related disorders.

GiGi's Playhouse Raleigh

GiGi's Playhouse - Down Syndrome Achievement Centers.

• Birth Defects, Genetic Diseases

• 169.

STXBP1 FOUNDATION

Non-profit dedicated to ending STXBP1-related disorders, rare neurodevelopmental and epileptic encephalopathies, and spreading awareness of this rare disease.

• Fund Raising and/or Fund Distribution

• 170.

ASXL RARE RESEARCH ENDOWMENT FOUNDATION

Supporting research and education to improve the quality of life for those living with ASXL-related disorders #BohringOpitz #ShashiPena and #BainbridgeRopers We support research and education to improve the lives of families living with ASXL syndromes.

• Fund Raising and/or Fund Distribution

• 171.

TO CURE A ROSE FOUNDATION

At To Cure A Rose Foundation, we’re on a mission to make genetic treatments faster, more affordable, and within reach—so that the next child born with a rare disease can receive a customized drug within days of diagnosis.