Cystinosis Research Foundation

The Cystinosis Research Foundation’s (CRF) mission is to find better treatments and a cure for cystinosis, a rare genetic disease that destroys every organ.

• Fund Raising and/or Fund Distribution

• 218.

Connor B Judge Foundation

Raising global awareness of #NMOSD & #MOGAD, building community, supporting research, advocating for rare disease patients/caregivers.

Cri Du Chat Research Foundation Inc

CDCRF is a 501c3 Non-Profit supporting the development of a treatment for Cri du Chat / 5p- Syndrome.

• Birth Defects, Genetic Diseases

• 220.

SHINE Syndrome Foundation Inc

DLG4-related Synaptopathy / SHINE Syndrome *Managed by the board of the DLG4 SHINE Foundation A page for people interested in learning more about DLG4-related Synaptopathy / SHINE Syndrome *Managed by the board of the DLG4 SHINE Foundation Our mission is to improve the quality of life for children and families impacted by DLG4 SHINE through supporting collaborative research among international medical professionals, nurturing a family community, and raising worldwide awareness.

• Fund Raising and/or Fund Distribution

• 221.

The TBCD Foundation

The TBCD Foundation is a non-profit organization for and by the TBCD Disorder community to raise funds and awareness in order to pursue effective treatments and a cure for TBCD.

• Fund Raising and/or Fund Distribution

• 222.

Chloe Strong Foundation

The Chloe Strong Foundation The Chloe Strong Foundation is a 501c3 nonprofit organization that exists to improve the quality of life for those that struggle with the rare neurological disorder Rett Syndrome by providing financial assistance support and prayers.

• Hospitals and Primary Medical Care Facilities

• 223.

COMMUNITY HEALTH CLINIC INC

Compassionate, Comprehensive & Coordinated Medical Genetics Care in Northern Indiana.

• Nerve, Muscle, and Bone Research

• 224.

THE MPN RESEARCH FOUNDATION

We’re a global research foundation stimulating research in pursuit of new treatments, & eventually a cure, for PV, ET, & MF.

• Public Foundations

• 225.

CURING RETINAL BLINDNESS

Welcome to our mission of bringing sight to children who are blind or visually impaired due to CRB1 retinal disease.