• Birth Defects, Genetic Diseases

• 154.

Aciem Charitable Foundation Inc

The ACIEM Foundation serves children with genetic errors whose life-saving treatments are under-covered by insurance and government assistance programs.

• Specifically Named Diseases

• 155.

NATIONAL UREA CYCLE DISORDERS FOUNDATION

Nonprofit supporting patients & families affected by urea cycle disorders.

Decoding Developmental Epilepsies

We serve two distinct communities. First, we serve those living with SCN8A and their families.

• Birth Defects, Genetic Diseases Research

• 157.

Hope for Pdcd Foundation

Fundraising for a cure for Pyruvate Dehydrogenase Complex Deficiency (PDCD) & advancing research for rare diseases.

• Professional Societies & Associations

• 158.

Healthspan Action Coalition Inc

The mission is to advance biomedical research related to aging, longevity and healthspan.

• Specifically Named Diseases

• 159.

Truelove Foundation Inc

PLANTING SEEDS OF HOPE & LOVE TO HELP OUR WILLIAMS SYNDROME FAMILY GROW & REACH THE WORLD PLANTING SEEDS OF HOPE & LOVE TO HELP OUR WILLIAMS SYNDROME FAMILY GROW & REACH THE WORLD ASSIST WILLIAMS SYNDROME FAMILIES About Our Foundation Currently The Truelove Foundation strives to help Williams Syndrome families across the Southeastern United States.

• Alliance/Advocacy Organizations

• 160.

Finding Nori Foundation

The Finding Nori Foundation Home About Meet the Team Finding Joy Blog Resources Publications DONATE Contact Upcoming Events More Raising research funding for PAX5 and ALG13 related neurological disordersEmpowering families with ultra rare undiagnosed diseases to find answers Our Mission Our mission is to advance scientific research through fundraising and advocacy for ultra rare undiagnosed genetic disorders.

• Epilepsy Research

• 161.

Love for Liam Foundation

Love For Liam Foundation Love For Liam Foundation Hope.

• Fund Raising and/or Fund Distribution

• 162.

Undiagnosed Diseases Network Foundation (UDNF)

Improving access to diagnosis, research, and care for all with undiagnosed and ultra-rare conditions.