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Fund Raising and/or Fund Distribution
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Renu Syndrome United
ReNU Syndrome Variants in RNU42 Uncovered as One of the Most Prevalent Causes of Neurodevelopmental Disorders Discovery Renews Hope for Affected Families Worldwide Characteristics may include Developmental Motor and Intellectual Delays Absent or Delayed Speech and Language Seizures Brain Abnormalities Small Head Size Distinct Facial Features Low Muscle Tone and Drooling Autism Spectrum Disorder Short Stature BoneSkeletal Anomalies Vision Issues and more More Information Big thanks to the researchers clinicians geneticists in these articlesfor this longawaited revelation.
Northlake
The Global Foundation for Peroxisomal Disorders
The GFPD's mission is to improve the lives of individuals with peroxisomal disorders by funding research, championing scientific collaboration, and empowering families and professionals through educational programs and support services.
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Brain Disorders
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CORTICAL MALFORMATION AND CEPHALIC DISORDER FOUNDATION INC
Nonprofit dedicated to improving the lives of those diagnosed with a cortical malformation or cephalic disorder.
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Saratoga Spgs
Cloves Syndrome Community
Support, Research & Education to improve the quality of life for ppl with CLOVES.
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Browns Point
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Magical Mila Foundation
🦋 Dedicated to the beautiful life and memory of Mila Gray Roomberg 💕 🦋 Raising awareness of NF1 and high blood pressure in infants and toddlers #BPUNDER3 *Dedicated to the beautiful life and memory of Mila Gray Roomberg *Raising awareness of NF1 and high blood pressure in infants and toddlers FOUNDATION FUNDS THE "BP UNDER 3 PROGRAM AT CHILDRENS HOSPITAL OF PHILADELPHIA CLINICAL TRAL TO VALIDATE BLOOD PRESSURE TECHNOLOGY IN CHILDREN UNDER 3 YEARS OLD.
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Jenkintown
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Epilepsy Research
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159.
Love for Liam Foundation
Love For Liam Foundation Love For Liam Foundation Hope.
Yardley
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Specifically Named Diseases
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Sisters Hope Foundation for Hereditary Diffuse Leukoencephalop
We are dedicated to amplifying patient voices, and one day meeting the first survivor of ALSP.
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Myerstown
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Diseases, Disorders, Medical Disciplines N.E.C.
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SIEGEL RARE NEUROIMMUNE ASSOCIATION
SRNA The nonprofit advocating for individuals with rare neuroimmune disorders ADEM AFM MOGAD NMOSD ON TM Help us provide hope and help to those living with ADEM AFM MOGAD NMOSD ON and TM.
Powell
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Down's Syndrome
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LUMIND IDSC FOUNDATION
We accelerate research to improve health for all with Down syndrome & empower families with support.
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WOBURN





