• Specifically Named Diseases

• 136.

Sickle Cell Disease Assn. of Illinois

Providing education, counseling, awareness and advocacy.

• Private Independent Foundations

• 137.

Hannah Storm Foundation

We fund surgeries for children suffering from Vascular Birthmarks.

THE CLINIC FOR SPECIAL CHILDREN INC

A nonprofit comprehensive medical practice focused on treating & researching rare genetic disorders.

• Birth Defects, Genetic Diseases

• 139.

Gene Spotlight Inc

We are a nonprofit medical research and advocacy organization committed to spark breakthroughs in treatments and cures for rare genetic disorders, including lysosomal storage diseases, uncommon cancers and other orphan diseases.

• Alzheimer's

• 140.

Ftd Disorders Registry LLC

The Registry is an online database to collect information from those affected by all types of frontotemporal degeneration (FTD).

• Neurology, Neuroscience

• 141.

Down With Dystonia

Our Mission Down with Dystonia strives to support, educate, and empower people living with dystonia and their families while raising awareness about this third most common movement disorder.

• Specifically Named Diseases

• 142.

3Q29 Foundation

3q29 Foundation Creating a path to treatment for chromosome 3q29 syndromes through funding research communitybuilding and increasing access to information and resources.

• Fund Raising and/or Fund Distribution

• 143.

Princess Hailey's Hope Foundation

We raise funds for DIPG/DMG brain cancer research and support kids battling the disease by providing Hugs from Hailey care packages and travel support to treatment centers.

Kindness for Kimberlee

Kindness for Kimberlee is a non-profit organization helping children affected by Steven's-Johnson Syndrome and Toxic Epidermal Necrolysis.