• Medical Disciplines

• 154.

Pediatric Neurotransmitter Disease Association Inc

The PND association is a disease organization representing children and families who are affected by a pediatric neurotransmitter disease.

• Fund Raising and/or Fund Distribution

• 155.

Ellie White Foundation for Rare Genetic Disorders Inc

We will not give up until a cure for Wolfram syndrome is found for Ellie and the children suffering from this disorder.

Born a Hero

Born A Hero is a research foundation with a mission to accelerate innovation and research to improve the quality of life for patients with FGFR syndromes.

• Lung

• 157.

NEHI Research Foundation

Working to improve the diagnostic process, find treatments and ultimately cure all forms of Children’s Interstitial Lung Disease through the support of research The NEHI Research Foundation is working to improve the diagnostic process, find treatments and untimely cure all forms of Children’s Interstitial Lung disease through the support of research.

• Fund Raising and/or Fund Distribution

• 158.

The Telomere Project

The Telomere Project is dedicated to funding lifesaving efforts for those affected by telomere syndromes, in particular, idiopathic pulmonary fibrosis IPF The Telomere Project is dedicated to funding lifesaving efforts for those affected by telomere syndromes TS in particular those which result in shortened telomeres or low telomere promotion.

• Alliance/Advocacy Organizations

• 159.

Jansen De Vries Syndrome Foundation

The Jansen de Vries Syndrome (JdVS) Foundation is a nonprofit, tax-exempt organization as defined in section 501(c)(3) of the Internal Revenue Code and, as such, contributions to JdVS Foundation are tax-deductible.

Action for Aidan

Please Help Us to Raise Money for Hunter Syndrome research.

• Public Foundations

• 161.

The Silverstein Foundation for Gba Research

The Silverstein Foundation: Accelerating research in Parkinson's with GBA Accelerating research in Parkinsonswith GBA The Silverstein Foundation for Parkinsons with GBA supports cutting edge research with the goal of discovering new therapies for the treatment of Parkinsons Disease in glucocerebrosidase GBA mutation carriers.

• Birth Defects, Genetic Diseases

• 162.

STXBP1 FOUNDATION

Non-profit dedicated to ending STXBP1-related disorders, rare neurodevelopmental and epileptic encephalopathies, and spreading awareness of this rare disease.