Huntington's Disease Society of America, Inc.

The Huntington’s Disease Society of America is the premier nonprofit organization dedicated to improving the lives of everyone affected by Huntington’s disease.

• Nerve, Muscle, and Bone Diseases

• 209.

Kurts Fund

The Kurt+Peter Foundation raises funds for research for a treatment and cure for limb-girdle muscular dystrophy, type 2c or "LGMD2C.

TGEN FOUNDATION

The mission of the TGen Foundation is to positively impact the lives of patients and their families by accelerating TGen's efforts to make and translate genomic discoveries into advances in human health.

• Urban, Community

• 211.

Invest Michigan

TO ENHANCE TECHNOLOGICIAL INNOVATION BY CREATING A NURTURING ENVIRONMENT DESIGNED TO ATTRACT START-UP AND EMERGING TECHNOLOGY-ORIENTED BUSINESSES IN MICHIGAN.

• Specifically Named Diseases Research

• 212.

The Snow Foundation

A voice for rare disease, working towards a cure for Wolfram syndrome and developing novel therapies for diabetes, vision loss, hearing loss neurodegeneration.

• Cancer

• 213.

Marit Swenson Shining Light Foundation for Dmg Dipg Research

In 2023 we raised over 45000 in memory of Marit in honor of what would have been her 22nd Birthday on August 22nd.

• Services to Promote the Independence of Specific Populations

• 214.

Project Strong Inc

Strong missioN Our mission at Project Strong is to empower children and young adults living with neuromuscular diseases discover and express their unique strengths by providing educational programs activities events that meet their needs.

• Fund Raising and/or Fund Distribution

• 215.

A Noble Journey Inc

Our mission is to raise money for the awareness of treatment of and research for a cure of MPS.

• Birth Defects, Genetic Diseases

• 216.

BPAN WARRIORS

Community resources, research and CONNECTION for BPAN Warrior families (WDR45, NBIA, Rare Disease, Parkinsons, Dementia, Epilepsy, Neurodegeneration, Genetics) BPAN Warriors is a growing international community of individuals who have loved ones directly affec BPAN WARRIORS CONNECT COLLABORATE CURE HOME RESEARCH PATIENT RESOURCES OUR TRIBE OUR PARTNERS DONATE RARE POV BLOG More 414 909BPAN RAREX unveils plan to radically change data collection and sharing to accelerate advances for patients in rare disease How One Rare Disease Advocate Learned to Look Across Diseases Study Makes Economic Case for Benefits of Data Sharing to Improve Diagnosis and Treatment of Rare Disease Patients Harnessing Machine Learning to Improve Diagnosis and Treatment of Rare Diseases Making Collaboration the Rule Rather than the Exception Why Data Sharing Is Critical for Accelerating Progress in Rare Disease PatientPowered Registry Boosts the Study of a Rare Disease What is Data Governance.