HSAN1E Society

Patient advocacy organization fighting for awareness and research of HSAN1E #RareDisease #Hearingloss #Neuropathy #Dementia #neurological disease HSAN1E Society’s purpose is to create awareness of HSAN1E, to provide emotional support to families affected by HSAN1E and help facilitate research.

• Brain Disorders

• 155.

Chiari Project

Community based 501(c)3 that focuses on education and research in pain management for Chiari.

• Nerve, Muscle, and Bone Diseases

• 156.

Global Spine Outreach, Inc.

Transforming lives of patients with complex spinal deformities worldwide through surgery & education Global Spine Outreach (GSO) transforms the lives of children with severe spinal deformities worldwide by performing state-of-the-art surgeries free of charge.

• Fund Raising and/or Fund Distribution

• 157.

COALITION TO CURE CHD2 INC

Fighting for our kiddos, and others, with CHD2-related neurodevelopmental disorders.

• Fund Raising and/or Fund Distribution

• 158.

Walk With Deco Inc

Come Turkey Trot with DeCo Nov 28th.

ARCH CORPORATION

Providing support for caregivers of people with Spinal Cord Injury (SCI) and Traumatic Brain Injury (TBI) to find balance in their own lives.

OPMD Association

Advocates for Oculopharyngeal Muscular Dystrophy.

• Birth Defects, Genetic Diseases

• 161.

CCD Smiles

Improving the lives of individuals with cleidocranial dysplasia through Connections, Awareness, Research, Education and Support (CARES).

• Human Service Organizations

• 162.

AMERICAS COMMITTEE FOR TREATMENT AND

ACTRIMS provides leadership in the field of multiple sclerosis and other demyelinating diseases.