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Similar organisations to International Sacral Agenesis / Caudal Regression Association

Community Rebuilding
  • Nerve, Muscle, and Bone Diseases

  • 208.

ARTHROGRYPOSIS MULTIPLEX CONGENITA SUPPORT Inc

Nonprofit supporting AMC communities through education, research, & fundraising 💙 Arthrogryposis Multiplex Congenita (AMC): "curving of joints" Supporting AMC communities through education, research, & fundraising.

Social Rank

14683

Location

Spartanburg

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Community Rebuilding

Cure Tay-Sachs Foundation

THE CURE TAY-SACHS FOUNDATION HAS BEEN CREATED TO FUND THE RESEARCH INITIATIVES THAT SHOW PROMISE TO TREAT AND ULTIMATELY CURE TAY-SACHS DISEASE (TSD).

Location

Phoenix

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Community Rebuilding
  • Fund Raising and/or Fund Distribution

  • 210.

Familial Dysautonomia (FD) Foundation, Inc.

FD Foundation is the leader in FD treatment and research.

Social Rank

6691

Location

New York

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Community Rebuilding
  • Health Support Services

  • 211.

ASSOCIATION FOR PELVIC ORGAN PROLAPSE SUPPORT INC

To access link to request entry into APOPS closed patient support forum, google APOPS Forum.

Social Rank

3300

Location

Mukwonago

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Community Rebuilding
  • Health Support Services

  • 212.

United Brachial Plexus Network

UBPN strives to inform, support, unite patients and medical professionals to enhance treatment and improve prevention worldwide.

Social Rank

5164

Location

Reading

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Community Rebuilding
  • Specifically Named Diseases

  • 213.

CURE ADSSL1

501(c)(3) non-profit patient advocacy group with the mission to find treatment for ADSSL1 myopathy Mission of the CURE ADSSL1 organization is to invest in research and develop treatment options for patients with rare neuromuscular disease caused by mutation in ADSSL1 gene.

Social Rank

20

Location

Glendale

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Community Rebuilding
  • Diseases, Disorders, Medical Disciplines N.E.C.

  • 214.

Rare Genes Movement

Our vision is to see every child have access to proper medical, therapeutic, and educational resourc Our purpose is to raise awareness and funds to help families of children with rare genetic disorder.

Social Rank

722

Location

Point Pleasant

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Community Rebuilding
  • International Relief

  • 215.

Foundation for International Urogynecological Assistance

IUGA is an international non-profit association dedicated to advancing urogynecological knowledge and improving patient care worldwide.

Social Rank

3993

Location

Burnsville

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Community Rebuilding

DOWN SYNDROME ASSOCIATION OF SAN DIEGO

Enhancing the quality of life for people with Down syndrome their families Click Here to Access the Event Calendar SUPPORT DSASD sponsors and cosponsors many support groups and activities throughout San Diego County that provide social interaction as well as practical support in order to reduce stress to develop constructive coping skills and exchange information.

Location

SAN DIEGO

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