• Public Foundations

• 136.

BARTH SYNDROME FOUNDATION INC

Barth Syndrome Foundation - saving lives through education, advances in treatments, and finding a cure for Barth syndrome.

• Nerve, Muscle, and Bone Diseases

• 137.

Myotonic Dystrophy Foundation

The world's largest patient organization focused solely on #myotonicDystrophy.

Phelan McDermid Syndrome Foundation

Official site of the Phelan-McDermid Syndrome Foundation.

• Private Grantmaking Foundations

• 139.

Gavin R Stevens Foundation

Our mission is to raise awareness and increase funding for research, to find a treatment and cure for blindness, focusing on Leber's Congenital Amaurosis (LCA) AWARENESS OF BLINDNESS FROM LCA var ANScustomeridbce0d824930843069bb3f3f1bcfd4038 Web Ecommerce Our Sponsors carryingcolin.

SNYDER-ROBINSON FOUNDATION

The Snyder-Robinson Foundation is a nonprofit organization with a mission to advance research relating to Snyder-Robinson Syndrome (SRS) & related disorders The Snyder-Robinson Foundation is a tax-exempt organization formed to advance medical and scientific The mission of The Snyder-Robinson Foundation is to find treatments or a cure for Snyder-Robinson Syndrome (SRS), and for related charitable, educational, and scientific purposes.

Cloves Syndrome Community

Support, Research & Education to improve the quality of life for ppl with CLOVES.

• Alliance/Advocacy Organizations

• 142.

Duchenne Brothers Foundation

Golfing for Wheelchair Soccer Registration Our Mission Our mission is to find a cure and improve the quality of life for all that suffer from Duchenne Muscular Dystrophy.

• Specifically Named Diseases

• 143.

Smith-Kingsmore Syndrome Foundation

Smith-Kingsmore Syndrome is a rare genetic disease.

• Specific Organ Research

• 144.

L-CMD RESEARCH FOUNDATION

L-CMD Research Foundation's purpose is to translate available scientific technologies into treatment Today we are one step closer to a tomorrow without LMNArelated congenital muscular dystrophy.