• Specific Organ Research

• 163.

Institute for Ethnomedicine Inc

Discovering cures for ALS and Alzheimer's Disease with two drugs in FDA clinical trials.

HSAN1E Society

Patient advocacy organization fighting for awareness and research of HSAN1E #RareDisease #Hearingloss #Neuropathy #Dementia #neurological disease HSAN1E Society’s purpose is to create awareness of HSAN1E, to provide emotional support to families affected by HSAN1E and help facilitate research.

• Specifically Named Diseases Research

• 165.

PROJECT ALIVE

A Hunter syndrome research and advocacy foundation.

• Research Institutes and/or Public Policy Analysis

• 166.

Forgotten Diseases Research Foundation

THE FORGOTTEN DISEASES RESEARCH FOUNDATION IS A NONPROFIT DEDICATED TO VERY RARE DISORDERS.

• Birth Defects, Genetic Diseases Research

• 167.

Ataxia Telangiectasia Children's Project, Inc.

The A-TCP organizes & supports innovative research to optimize disease management strategies, develop new treatments and find a cure for ataxia-telangiectasia.

• Birth Defects, Genetic Diseases

• 168.

Bucks County Cystic Fibrosis Alliance

Bucks County PA Families raising money to fund new therapies and medications to treat Cystic Fibrosis with the long term goal of finding a Cure.

• Alliance/Advocacy Organizations

• 169.

Trpm3 Foundation

Patient advocacy and support for those affected by #TRPM3 #ionchannel related disorders.

• Alliance/Advocacy Organizations

• 170.

flok Health

Redefining clinical care and research priorities in metabolic health through the power of patient data.

• Birth Defects, Genetic Diseases Research

• 171.

ADLD CENTER

The ADLD Center is focused on raising awareness about Autosomal Dominant Leukodystrophy ADLD and developing a network of clinicians researchers patients and their caregiversadvocates in order to raise funds as we move forward towards finding a cure.