HSAN1E Society

Patient advocacy organization fighting for awareness and research of HSAN1E #RareDisease #Hearingloss #Neuropathy #Dementia #neurological disease HSAN1E Society’s purpose is to create awareness of HSAN1E, to provide emotional support to families affected by HSAN1E and help facilitate research.

Coming Together For A Cure, Inc

A 501c3 nonprofit dedicated to advancing stem cell therapy for Duchenne MD and other rare diseases.

• Diseases, Disorders, Medical Disciplines N.E.C.

• 138.

National Niemann-Pick Disease Foundation

National Niemann-Pick Disease Foundation The NNPDF offers support and guidance to families and patients of those affected by Niemann-Pick Dise Mission: We are a non-profit group dedicated to supporting and empowering patients and families affected by Niemann-Pick disease through education, collaboration and research.

• Birth Defects, Genetic Diseases

• 139.

International Gene Synthesis Consortium

International Gene Synthesis Consortium International Gene Synthesis Consortium What Is Biosecurity.

• Research Institutes and/or Public Policy Analysis

• 140.

The Kronos Longevity Research Institute

KLRI is dedicated to understanding the human aging process and preventing age-related diseases.

• Specifically Named Diseases

• 141.

YBRP Inc

YBRP is a non-profit organization whose mission is to positively impact the lives of individuals with HNRNPH2 genetic variations.

• Birth Defects, Genetic Diseases

• 142.

Jscreen org Inc

jscreen is a national, non-profit, public health initiative dedicated to preventing genetic diseases & promoting healthy families.

Adcy5.org

Supports #raredisease ADCY5 gene variant population - patients, doctors, researchers.

• Nerve, Muscle, and Bone Diseases

• 144.

Cure VCP Disease Inc

Promoting a cure for diseases related to mutations of the Valosin Containing Protein gene ABOUT US FOR PATIENTS FOR RESEARCHERS FOR CLINICIANS EVENTS BLOG GIVE SHOP MORE Finding a cure is in our DNA Cure VCP Disease Inc.