TGEN FOUNDATION

The mission of the TGen Foundation is to positively impact the lives of patients and their families by accelerating TGen's efforts to make and translate genomic discoveries into advances in human health.

HEALING KADI FOUNDATION

Our mission is to provide modern reliable and sustainable health care services to the people of South Sudan.

Cancer Genomics Consortium

The CGC represents clinical cytogeneticists, molecular geneticists, and molecular pathologists to promote best practices & education in clinical cancer genomics The CGC is focused on education and promoting best practices in clinical cancer genomics.

• Birth Defects, Genetic Diseases Research

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SMS Research Foundation

The mission of the Smith-Magenis Syndrome Research Foundation is to advance scientific research leading to innovative treatment options for people living with SMS.

• Specifically Named Diseases

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Wylder Nation Foundation

WARRIORS in the Fight Against Lysosomal Storage Disorders.

Decoding Developmental Epilepsies

We serve two distinct communities. First, we serve those living with SCN8A and their families.

The Kabuki Gathering

To foster connections with families who have a family member with Kabuki Syndrome.

• Fund Raising and/or Fund Distribution

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The Children's Rare Disorders Fund

Dedicated to curing rare genetic disorders Founded in July 2022 by parents of a toddler affected by FOXG1, The CRD Fund focuses on under served communities in the rare disorder space.

• Specifically Named Diseases Research

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SLC6A1 CONNECT

People Magazine Exclusive Milestones for Maxwell What if your child was diagnosed with a disease so rare it didnt have a name.