• Private Independent Foundations

• 118.

Julia Cekala Char Fndn Tr

Home About Julia Julias Garden Events Support Contact Us OnMay 23rd 2003 Julia passed away at Bostons ChildrensHospital.

Alport Syndrome Foundation Inc

Improving patient lives through education, empowerment, advocacy, and research with a vision to conquer #Alportsyndrome.

• Birth Defects, Genetic Diseases

• 120.

Prader-Willi Syndrome Association of Wisconsin Inc

Wisconsin based chapter of the Prader-Willi Syndrome Association Support, Educate, and Advocate The mission of PWSA-WI, Inc.

• Nerve, Muscle, and Bone Diseases

• 121.

Les Turner Amyotrophic Lateral Sclerosis Foundation

The Les Turner ALS Foundation is the leader in comprehensive ALS care in Chicagoland.

• Alliance/Advocacy Organizations

• 122.

Osteopetrosis Society Inc

The OsteoPETrosis Society is dedicated to providing support, education and awareness for all forms of OsteoPETrosis (recessive, intermediate & dominant).

COPA Syndrome Foundation

The COPA syndrome is an inherited disorder that is caused by mutations in the COPA gene.

• Professional Societies & Associations

• 124.

Sturge-Weber Foundation

Embracing our uniqueness. We may be rare, but we're also one in a million.

• Fund Raising and/or Fund Distribution

• 125.

Coopers Cure

COOPER39S CURE HOME DONATE COOPERx27S STORIES COOPER FEST COOPERx27S TRIBE CONTACT More.

• Fund Raising and/or Fund Distribution

• 126.

ASXL RARE RESEARCH ENDOWMENT FOUNDATION

Supporting research and education to improve the quality of life for those living with ASXL-related disorders #BohringOpitz #ShashiPena and #BainbridgeRopers We support research and education to improve the lives of families living with ASXL syndromes.