RIVERBEND DOWN SYNDROME ASSOCIATION

The Riverbend Down Syndrome Association is a volunteer-run organization providing support and inform To advocate for the needs of individuals with Down syndrome To offer support, acceptance and encouragement for parents and families of persons with Down syndrome To increase our awareness and knowledge of issues relating to Down syndrome To educate the community about the presence, the potential and the needs to people with Down syndrome To promote inclusive environments for all persons Amplifying the voices of individuals with Down syndrome fosters acceptance promotes inclusion and advocates for their rights inspiring others to support and embrace people of all abilities.

• Research Institutes and/or Public Policy Analysis

• 101.

Forgotten Diseases Research Foundation

THE FORGOTTEN DISEASES RESEARCH FOUNDATION IS A NONPROFIT DEDICATED TO VERY RARE DISORDERS.

• Patient Services�Entertainment, Recreation

• 102.

OMSLIFE FOUNDATION INC

For research and awareness of rare deseases Home Our mission is to raise awareness of Opsoclonus Myoclonus Syndrome maintain a support network for caregivers and fund research for a cure.

PRADER-WILLI CALIFORNIA FOUNDATION

Our vision is a A Full Life Without Limits for everyone with Prader-Willi syndrome.

• Alliance/Advocacy Organizations

• 104.

Young Genetic Stroke Alliance

Raising awareness and educating the community on all things related to this rare disease.

• Specifically Named Diseases

• 105.

Watch 4 Wegeners

It could save a life. Home Sarahx27s Story About Our Board Contact Us Run To Raise Testimonials More Watch 4 Wegeners It Could Save a Life Our daughter Sarah River Whitmire was a college student in pharmacy school when she died suddenly at age 20 from complications of undiagnosed Granulomatosis with Polyangiitis GPA also known as Wegener39s Disease a rare autoimmune disease that no one knew she had.

• Specifically Named Diseases

• 106.

Marshall-Smith Syndrome Organization of the USA Inc

The mission of Marshall-Smith Syndrome Organization of the USA, Inc.

• Developmentally Disabled Services/Centers

• 107.

DOWN SYNDROME ASSOCIATION OF BREVARD

A nonprofit organization dedicated to improving the lives of individuals with Down syndrome.

• Birth Defects, Genetic Diseases

• 108.

GRIN2B FOUNDATION

Our goal is to offer support and share research to the small, but growing community of children diagnosed with alterations on their GRIN2B gene.