PHEO ALLIANCE

Advocacy, awareness and support for those affected by #pheochromocytoma/ #paraganglioma The mission of the Pheo Para Alliance is to invest in research to accelerate treatments and cures while empowering patients, their families, and medical professionals through advocacy, education and a global community of support.

• Alliance/Advocacy Organizations

• 137.

Advancing Sickle Cell Advocacy Project Inc

A. S. A. P. 's purpose is to advocate and educate in South Florida for those affected by Sickle Cell Disease or Trait as well as bring awareness to the community.

• Specifically Named Diseases Research

• 138.

GRACE SCIENCE FOUNDATION

We are changing how scientific research is done.

• Patient Services�Entertainment, Recreation

• 139.

EDS Guardians, Inc

World's 1st patient-to-patient "pay-it-forward" 501(c)(3) nonprofit charity that helps Ehlers-Danlos Syndromes patients who lack support and need vital care.

• Birth Defects, Genetic Diseases

• 140.

Shwachman-Diamond Syndrome Alliance Inc

Shwachman-Diamond Syndrome Alliance is a nonprofit aimed at accelerating research and therapy development for this rare disease.

Dlg4 Research Fund

DLG4-related Synaptopathy / SHINE Syndrome *Managed by the board of the DLG4 SHINE Foundation A page for people interested in learning more about DLG4-related Synaptopathy / SHINE Syndrome *Managed by the board of the DLG4 SHINE Foundation Mission To find specific treatment options and a cure for DLG4 patients by building a collaborative network of patients, families, clinicians and scientists that will work together to raise awareness and accelerate the understanding, diagnosis and treatment of DLG4 related synaptopathy.

DOWN SYNDROME ASSOCIATION OF SAN DIEGO

Enhancing the quality of life for people with Down syndrome their families Click Here to Access the Event Calendar SUPPORT DSASD sponsors and cosponsors many support groups and activities throughout San Diego County that provide social interaction as well as practical support in order to reduce stress to develop constructive coping skills and exchange information.

AXYS

Association for X and Y Chromosome Variations.

• Health Support Services

• 144.

REBLOOM CENTER INC

Home About The Board EventsSupport Group Education Resources OUR SPONSORS Group Classes Testimonials Volunteers More R E B L O O M rebuilding lives out of movement Our MISSION The REBLOOM CENTER is a nonprofit 501c3 organization with a mission to provide a welcoming community space where all people in our community impacted by Parkinsons disease can have continuous access to high quality diverse exercise programs voice training a support group and educational resources to preserve quality of life throughout their Parkinsons journey.