RIVERBEND DOWN SYNDROME ASSOCIATION

The Riverbend Down Syndrome Association is a volunteer-run organization providing support and inform To advocate for the needs of individuals with Down syndrome To offer support, acceptance and encouragement for parents and families of persons with Down syndrome To increase our awareness and knowledge of issues relating to Down syndrome To educate the community about the presence, the potential and the needs to people with Down syndrome To promote inclusive environments for all persons Amplifying the voices of individuals with Down syndrome fosters acceptance promotes inclusion and advocates for their rights inspiring others to support and embrace people of all abilities.

• Birth Defects, Genetic Diseases

• 92.

The American Board of Genetic Counseling Inc

The American Board of Genetic Counseling (ABGC) sets, refines and upholds standards for the genetic counseling practice, reports on changes in the field and offers the profession’s only accredited certification exam.

Turner Syndrome Society of the United States

Official twitter page for Turner Syndrome Society of the US, where we advance knowledge, facilitate research and providing support for all touched by TS.

• Birth Defects, Genetic Diseases

• 94.

Project 8p Foundation

Project 8p aims to accelerate the translation of scientific research into therapies and treatment and advocate for the 8p community.

Lcc Foundation Inc

The LCC Foundation’s MISSION is to help families across the United States and beyond diagnosed with Leukoencephalopathy with Brain Calcifications and Cysts (LCC) by giving them the resources they need to fight this rare and devastating disease.

• Fund Raising and/or Fund Distribution

• 96.

The Children's Rare Disorders Fund

Dedicated to curing rare genetic disorders Founded in July 2022 by parents of a toddler affected by FOXG1, The CRD Fund focuses on under served communities in the rare disorder space.

• Down's Syndrome

• 97.

DSAG

Connecting & Celebrating the Down Syndrome Community in the Baton Rouge Area #DSAGBR At DSAG, our mission is to provide parent support and public awareness to improve the life for those with Down syndrome in the Baton Rouge area.

• Birth Defects, Genetic Diseases

• 98.

LEO'S LIGHTHOUSE FOUNDATION INC

Leo’s Lighthouse is a non-profit making a difference in the lives of children affected by Bainbridge-Ropers Syndrome.

• Single Organization Support

• 99.

THE MED13L FOUNDATION INC

Supporting MED13L families through awareness, research, and community.