The Paisley Foundation Inc

Raise awareness of Thanatophoric Dysplasia, financially support clinical research, and provide financial assistance and community resources to affected families Raise Awareness of Thanatophoric Dysplasia Financially Support Clinical Research and Provide Financial Assistance and Community Resources to Affected Families Building a Community to Support TD Families The foundations purpose is to raise awareness of Thanatophoric Dysplasia TD financially assist families both in their everyday lives and where insurancesocial programs fall short and to be a community resource for families present and future whose children have TD.

• Professional Societies & Associations

• 137.

Society for Craniofacial Genetics and Developmental Biology Inc

The Society for Craniofacial Genetics and Developmental Biology was founded in 1975 to promote research, education, communication and policy.

• Alliance/Advocacy Organizations

• 138.

The Cute Syndrome Foundation, Inc.

The Cute Syndrome Foundation raises awareness of SCN8A mutations, funds the dedicated and talented scientists researching SCN8A, and supports the families around the world who are affected by SCN8A-related disorders.

• Digestive Diseases, Disorders

• 139.

EOSINOPHILIC FAMILY COALITION

Our Mission: To support and enhance the lives of families living with eosinophilic disorders while advocating for those families and educating those around us.

Alagille Syndrome Alliance

The Alagille Syndrome Alliance is an international support and advocacy network for people with ALGS and their families.

• Alliance/Advocacy Organizations

• 141.

Nrxn1 Network

Our mission is to build a collaborative network of families, clinicians, and scientists in order to support individuals affected by NRXN1 disorder.

• Counseling Support Groups

• 142.

NORTHWEST DISABILITY SUPPORT

We work to create a more inclusive society for people with disabilities.

• Developmentally Disabled Services/Centers

• 143.

Down Syndrome Network of Montgomery County Inc

DSNMC empowers and supports individuals with Down syndrome, their families and the community through education, information, public awareness and advocacy.

• Birth Defects, Genetic Diseases

• 144.

PRISMS Inc

PRISMS provides support to families of persons with Smith-Magenis Syndrome (SMS) What is SMS.