United Mitochondrial Disease Foundation

UMDF powers the research, education, & support that is advancing treatments for patients and families affected by mitochondrial disorders.

• Professional Societies & Associations

• 92.

American Urological Association Inc

The American Urological Association is a premier urologic association, providing invaluable support to the urologic community.

• Specifically Named Diseases

• 93.

Wylder Nation Foundation

WARRIORS in the Fight Against Lysosomal Storage Disorders.

ALD Connect, Inc.

Our mission is to improve health outcomes for individuals with ALD by empowering patients/caregivers, raising awareness, and accelerating the translation of scientific breakthroughs into better clinical care.

• Kidney

• 95.

Improving Renal Outcomes Collaborative

Partnering with patients who have kidney disease and their families to improve health, longevity, and quality of life.

• Birth Defects, Genetic Diseases Research

• 96.

Valerias Foundation for Kcnt1 Research Inc

#rettevaleria #savevaleria #helpvaleria #supportvaleria #valeriasKCNT1 #raredisease #epilepsy #geneticdisorder #meinestimmefuereinleben #teamvaleria The Valeria Foundation is committed to achieving that: [+] to promote knowledge about the existence and cure of orphan diseases.

• Patient Services�Entertainment, Recreation

• 97.

HLH Heroes Foundation Not for Profit

"NO ONE FIGHTS ALONE" The mission of HLH Heroes Foundation is to provide support to individuals and families impacted by HLH.

• Specifically Named Diseases

• 98.

GLOBAL DARE FOUNDATION

Do you have Refsum Disease. Defeat Adult Refsum Everywhere Global DARE Foundation Awarded Prestigious Chan Zuckerberg Initiatives Rare as One Program Grant We DARE toBelieve Driving research is at the center of what we do because we DARE to believe there is a cure for Adult Refsum Disease.

• Alliance/Advocacy Organizations

• 99.

WORLD PATIENTS ALLIANCE

The World Patients Alliance is an umbrella organization of patients and patients organizations around the globe.