DIALYSIS PATIENT CITIZENS INC

DPC is a patient-led group working to improve the quality of life for all kidney disease and dialysis patients through education and advocacy.

• Single Organization Support

• 119.

THE NATIONAL ADRENAL DISEASES FOUNDATION INC

The National Adrenal Diseases Foundation informs, educates, and supports those with adrenal disease and their families to improve their quality of life.

NEW ENGLAND CONNECTION FOR PKU AND ALLIED DISORDERS INC

Volunteer, nonprofit, striving to be a supportive resource for New England area families and friends affected by inborn errors of metabolism, such as PKU.

• Public Health Programs

• 121.

United Pompe Foundation

SUPPORT RESEARCH FOR POMPE DISEASE AND HELP PATIENTS DEALING WITH POMPE DISEASE United Pompe Foundation The United Pompe Foundation was formed to assist patients andor their families with medical costs and other expenses that these patents and families face and may not be able to cover or fully cover through their insurance.

DUPUYTREN RESEARCH GROUP

Dupuytren Research Group: A Future Without Dupuytren Disease Mission Statement: A future without Dupuytren disease.

• Birth Defects, Genetic Diseases

• 123.

Gene Spotlight Inc

We are a nonprofit medical research and advocacy organization committed to spark breakthroughs in treatments and cures for rare genetic disorders, including lysosomal storage diseases, uncommon cancers and other orphan diseases.

• Organ and Tissue Bank

• 124.

Kidney Champion Foundation

The Kidney Champion Foundation educates historically marginalized and underserved communities about kidney disease while fighting for inclusive and equitable access to care.

Texas Neurofibromatosis Foundation

We’re a community of NF patients, parents, doctors and advocates who want to listen, support or help you as we can.

• Private Grantmaking Foundations

• 126.

Acid Maltase Deficiency Association Inc

About AMDA Recently Added 2025 PCMA Pull for Pompe Fundraiser Jan 28 2025 ARCHIVES NEWS The AMDA is excited to announce that.