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Similar organisations to United Porphyrias Association

Community Rebuilding
  • Research Institutes and/or Public Policy Analysis

  • 91.

AMERICAN ACNE AND ROSACEA SOCIETY

From Breakouts to Breakthroughs AARS Journey Continues Discover how the American Acne and Rosacea Society AARS fulfills its mission and see how the AARS has encouraged research provided education and helped advance patient care.

Location

Montclair

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Community Rebuilding
  • Diseases of Specific Organs

  • 92.

Coalition of Skin Diseases

The Coalition of Skin Diseases (CSD) advocates on behalf of the 84 million Americans living with a skin disease.

Social Rank

131

Location

Washington

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Community Rebuilding

Friends of Parkinsons Inc

We are a non-profit organization that provides a resource center, outreach awareness, and support groups for people with #Parkinsons.

Social Rank

3248

Location

LAS VEGAS

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Community Rebuilding

Parkinson Association of Central Florida Inc

PACF serves as a focal point in Orlando to support community programs and raise funds for Parkinson's research to find a cure.

Social Rank

982

Location

WINTER PARK

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Community Rebuilding
  • Cancer

  • 95.

GORLIN SYNDROME ALLIANCE

Empowering those with Gorlin Syndrome to live rich, full, happy lives.

Social Rank

1600

Location

Reading

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Community Rebuilding
  • Birth Defects, Genetic Diseases Research

  • 96.

Spata Foundation Inc

Our mission is to advocate, educate, and raise funds for research towards SPATA5 & SPATA5L1 Disorders The SPATA Foundation's Mission is to advocate, educate, and drive research towards SPATA5 and SPATA5L1 Related Disorders.

Social Rank

579

Location

Palm Coast

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Community Rebuilding
  • Alliance/Advocacy Organizations

  • 97.

Trpm3 Foundation

Patient advocacy and support for those affected by #TRPM3 #ionchannel related disorders.

Social Rank

47

Location

MANSFIELD

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Community Rebuilding
  • Specifically Named Diseases

  • 98.

Eds Resource Network

EDS Resource Network (EDSRN), a 501(c)(3) nonprofit of Utah, provides aid, education, and support to the Ehlers-Danlos Syndromes (EDS) patients, caregivers, and medical providers across the state.

Location

Sandy

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Community Rebuilding

LUPUS AMERICA COMMUNITIES

Lupus is an unpredictable & misunderstood autoimmune disease that ravages different parts of the body.

Social Rank

286247

Location

WASHINGTON

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