Similar organisations to United Porphyrias Association
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Diseases, Disorders, Medical Disciplines N.E.C.
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145.
LYMPHANGIOMATOSIS & GORHAMS DISEASE ALLIANCE INC
Patient-driven solutions for complex lymphatic anomalies: GLA, GSD, KLA, CCLA • Support-Research-Education • Somatic mutations PIK3/mTor & RAS/MAPK pathways Patient advocacy group dedicated to patient driven solutions for complex lymphatic anomalies We connect patients and families to peers and networks of care, partner to advance new research, and educate the medical community to help all people navigating complex lymphatic anomalies have hope for a healthier tomorrow.
2896
Saint Petersburg
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Birth Defects, Genetic Diseases
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146.
Pku Nowrthwest Alliance
The PKU Northwest is a non-profit 501c(3) that organizes annual events for the PKU in the PNW.
673
Seattle
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Lung
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147.
American Lung Association of New York Inc
American Lung Association is the leading organization working to save lives by improving #lunghealth and preventing lung disease.
156576
East Hartford
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Other Art, Culture, Humanities Organizations/Services N.E.C.
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148.
End Allergies Together Inc
E•A•T funds research for the growing food allergy epidemic through our $1 Million E•A•T Grand Challenges.
14051
Wellesley Hills
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Fund Raising and/or Fund Distribution
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149.
Martin Mueller Iv Achalasia Awareness Foundation
A Non-profit foundation created to raise awareness for the disease Achalasia, educate, and raise funds for Achalasia research.
3415
Bonaire
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Specifically Named Diseases
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150.
Prion Alliance Inc
Non-profit organization devoted to funding scientific research towards a treatment or cure for human prion diseases.
2686
Cambridge
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Birth Defects, Genetic Diseases Research
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151.
International Association for Chronic Fatigue Syndrome-Me
THE MISSION OF IACFS/ME IS TO PROMOTE, STIMULATE AND COORDINATE THE EXCHANGE OF IDEAS RELATED TO CHRONIC FATIGUE SYNDRONE(CFS) AND FIBROMYALGIA(FM) RESEARCH, PATIENT CARE AND TREATMENT IN ADDITION, THE IACFS/ME PERIODICALLY REVIEWS THE CURRENT RESEARCH AND TREATMENT LITERATURE AND MEDIA REPORTS FOR THE BENEFIT OF SCIENTISTS, CLINICIANS AND PATIENTS.
Stony Brook
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Private Grantmaking Foundations
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152.
Acid Maltase Deficiency Association Inc
About AMDA Recently Added 2025 PCMA Pull for Pompe Fundraiser Jan 28 2025 ARCHIVES NEWS The AMDA is excited to announce that.
San Antonio
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Single Organization Support
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153.
POMPE WARRIOR FOUNDATION
A non profit organization working to educate, research, and empower individuals and families affected by Pompe Disease and other rare diseases.
809
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