THE BUTTERFLY FUND

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At The Butterfly Family Fund, we are dedicated to supporting caregivers and families living with Epidermolysis Bullosa, while empowering and inspiring a life of wellness. Our mission is simple. Our mission is to do something. At The Butterfly Family Fund, we are dedicated to supporting caregivers and families living with Epidermolysis Bullosa, while empowering and inspiring a life of wellness. We provide resources, education, and community to help navigate life with EB through positivity, resilience, hope, connection and compassion. Our mission is to create a nurturing space where caregivers avoid burnout and families thrive. We hope to help navigate the delicate world of EB where both caregivers and their families can not only find balance and wellness, but also experience as much joy this world can offer.

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272762807

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Smartsville

Address: PO Box 96, SmartsvilleWeb: Sign in to see organisation websiteFacebook: thebutterflyfamilyfundICO: 272762807

My Site What is EB. Courage Resiliency Strength BFF Box of Love What better way to spread a little love to your loved ones than by inspiring calm joy wellness happiness kindness and a mini spa treatment. Not only will this box bring love to your loved ones but our loved ones at The Butterfly Family Fund too. With every purchase a handmade Valentines card will be sent to a BFF family.

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Yvonne

2. What role do you think mindfulness practices can play in enhancing the well-being of caregivers and families dealing with chronic conditions like EB?

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THE BUTTERFLY FUND

I type this letter with the deepest sadness in my core, but it’s something we have to do. We’ve decided to take a step back from The Butterfly Family Fund. To take some time to figure out what all of this really means.

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THE BUTTERFLY FUND

Thank you Kelsey Studer for sharing Boone’s life with us and the world. You are making it a much better place and your advocacy will only make it better.

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Luke

✨ Just ordered my BFF Box of Love! Can't wait to share some joy and wellness with my loved ones while also supporting such a beautiful cause. Keep spreading that love, Butterfly Family! 💕🌼

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Christina

💛 So inspired by The Butterfly Family Fund and their incredible mission! Sending love to all the families impacted by EB and supporting caregivers who do such amazing work! 🌈🦋

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Anna

1. How can we further engage the community in our mission to support families affected by Epidermolysis Bullosa through activities or events?

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