THE XLH NETWORK INC

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The Official Facebook Page of The XLH Network, Inc. The XLH Network, Inc.'s mission is to facilitate advocacy, education and research for XLH and related disorders by creating resources and a community for affected families, educating and supporting physicians and other providers of medical care, and fostering the search for a cure.

Founded

2005

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2500

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Address

Albany

Address: 911 Central Ave., #161, AlbanyWeb: Sign in to see organisation websiteFacebook: xlhnetworkEmployees: 2Volunteers: 6Revenue: 401860ICO: 202441942

Home Page - XLH Network Community. Education. Advocacy. Compassion.

News & Updates XX

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News about from their social media (Facebook and X).

Isabel

💙 So grateful for the work the XLH Network does! It's so important to raise awareness and support those affected by XLH. Together, we can make a difference! #XLHNetwork #SupportEachOther

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Catherine

🌟 Just joined the XLH Network community! Excited to connect with others and learn more about XLH. Let's spread awareness and support each other on this journey! 💪 #XLHAwareness #CommunitySupport

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THE XLH NETWORK INC

Missed the Scholarship Deadline for XLH Day. Don’t Panic. You can still submit a scholarship application and be added to our waiting list.

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Renee

- What strategies can The XLH Network implement to raise awareness about X-Linked Hypophosphatemia in broader communities and among healthcare professionals?

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Patrick

- How can we enhance support systems within the XLH community to better connect families and individuals dealing with the challenges of this rare genetic disorder?

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THE XLH NETWORK INC

We’re very excited to share that the XLH Network, Kyowa Kirin, and SmithSolve have been named finalists in two categories for the PR Daily’s 2025 Nonprofit Communications Awards for the XLH Community Impact Survey. Finalists will be recognized, and winners will be announced on September 26. This recognition is a testament to the hard work and collaboration over the last few years between the three entities.

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