APBD RESEARCH FOUNDATION
Supporting individuals and families affected by Adult Polyglucosan Body Disease (APBD), and accelerating improved APBD diagnoses, care and treatment options. Dedicated to finding a cure for APBD, while improving the lives of those impacted! TO FUND MEDICAL RESEARCH FOR TREATMENT AND PUBLIC EDUCATION
Founded
2005
549
X (Twitter)
323
Address
Brooklyn
Homepage - Adult Polyglucosan Body Disease Research Foundation (APBDRF) Dedicated to finding a cure for APBD while improving the lives of those affected Donate today to ourend of year campaign Moving the needle for APBD research Sign up for Updates Whats New APBD Community Joins Millions of Rare Advocates Around the World for Rare Disease Day February 24th 2025 CZIs Cycle 1 Rare As One Impact Report Features APBDRFs Work Alongside Peers to Advance Rare Disease Research January 18th 2025 Melanie Robinsons Caregiving Journey Reaches Millions January 17th 2025 Featured YearEnd Giving Campaign 2024 From now until December 31 your gift will have triple the impact. Thanks to a dollarfordollar match from our Board of Directors up to 80000 and an additional 25000 match from Ora Gordon MD MS FACMGG your support goes further than ever. At the APBD Research Foundation we are dedicated to finding a cure for APBD while improving the lives of those impacted. Understanding APBD Research Diagnosed Now What.
From Social media
News about from their social media (Facebook and X).
APBD RESEARCH FOUNDATION
🌍 Join us for a Special Event. 🌍 We’re excited to partner with Alex TLC and AGSD - UK on the International APBD Patient Chat on June 25, 2025 — a special event for APBD patients aimed at connecting our global community. 🤝 Read more and register here: https://loom.
Like Comment
APBD RESEARCH FOUNDATION
We're celebrating National Public Health Week (April 7-13) to raise the profile of rare diseases as a public health priority. APBD is 1 of 10,000 rare diseases affecting over 30 million (or 1 in 10) people in the US -- and 300 million globally. It is also among the 95% of rare diseases that have no FDA-approved treatments.
Like Comment
Data about organisation
Brooklyn
Organisations from APBD RESEARCH FOUNDATION
945. INTERNATIONAL SPORTS AND MUSIC PROJECT
The International Sports and Music Project is a 501(c)(3) nonprofit org that uses sports and music to bring healing and joy to kids in schools, refugee camps, and shelters in the USA and around the world.
"The Cure for the Common Patriarchy.
Dedicated to finding a cure for APBD, while improving the lives of those impacted.
Since 2014, the Every Woman Biennial (formerly Whitney Houston Biennial) has showcased the work of female and female identified artists in New York City.
949. MENACHEM EDUCATION FOUNDATION INC
Professionalizing education and empowering children - one school, classroom, teacher, school leader.
Similar organisations
Similar organisations to APBD RESEARCH FOUNDATION based on mission, location, activites.
Advocacy, awareness and support for those affected by #pheochromocytoma/ #paraganglioma.
To raise awareness, build community, improve care and find a cure for PSP, CBD and MSA.
Aplastic Anemia and MDS International Foundation
Fighting Bone Marrow Failure Diseases through Patient Support and Research -Aplastic Anemia, MDS, PNH.
Our mission is to educate healthcare professionals and patients on the SDHB genetic germline mutation as well as its role and impact in this orphan disease.
Tbc1d24 foundation is a research organization and connecting site for caregivers, families, and those diagnosed with Tbc1d24 mutations.
Similar Organisations Worldwide
Organisations in the world similar to APBD RESEARCH FOUNDATION.
THE APLASTIC ANAEMIA TRUST (uk)
The official Facebook page for The Aplastic Anaemia Trust - the only charity in the UK focused on aplastic anaemia and allied rare bone marrow failures .
National charity supporting people with the painful skin condition, Epidermolysis Bullosa (EB).
Interesting nearby
Interesting organisations close by to residence of APBD RESEARCH FOUNDATION
Dedicated to finding a cure for APBD, while improving the lives of those impacted.
Similar social media (872)
Organisations with similar social media impact to APBD RESEARCH FOUNDATION
174192. Community Lunch On Capitol Hill
Feeding the Community, Serving the Community, Creating Community.
174194. APBD RESEARCH FOUNDATION
Dedicated to finding a cure for APBD, while improving the lives of those impacted.
Autism Answers was founded to assist such families and children, and to make our society more aware and responsive to the need for “diversity and inclusion.
Join us and make a difference for the future!
Transparent, useful, and beautifully designed.
Joanna
Simple interface, deep purpose. Eduo makes it easy for everyday people to become part of a global community doing good.
Kira
As a volunteer, I love how Eduo.org empowers people to contribute locally. It feels like Wikipedia for good deeds — written by the people, for the people.
Michelle
A brilliant resource for anyone who wants to do good more effectively.
Pamela
Like Wikipedia for nonprofits — but even more inspiring.
Pamela
Finally, a platform that brings transparency and accessibility to the nonprofit world. Eduo makes it simple to see who’s doing meaningful work and how to get involved.
Eve
Sign Up
Please fill in your information. Everything is free, we might contact you with updates (but cancel any time!)
Sign in with GoogleOr
Good News
Sára
2025-10-28
our family. Excited to see them embrace new friendships and grow in their faith! Education is a journey, and I'm grateful for the support we found along the way. Let's inspire our kids to lead with love and compassion! ❤️📚 #PositiveChange #CommunitySupport
Training Kids in Jesus' Ways -- Not Neutrality or Nationalism
Patheos - Seek. Understand.
Like Comment
Lenna
2025-10-28
"Exciting times for retail! 🌟 As we embrace a future that prioritizes human connection, it’s inspiring to see brands focusing on creating memorable experiences for shoppers. Let's keep pushing for soul in every interaction! #RetailWithSoul #PositiveChange #Eduo"
Why does the future of retail need more soul?
The Drum
Like Comment