APBD RESEARCH FOUNDATION
Supporting individuals and families affected by Adult Polyglucosan Body Disease (APBD), and accelerating improved APBD diagnoses, care and treatment options. Dedicated to finding a cure for APBD, while improving the lives of those impacted! TO FUND MEDICAL RESEARCH FOR TREATMENT AND PUBLIC EDUCATION
Founded
2005
549
X (Twitter)
323
Address
Brooklyn
Homepage - Adult Polyglucosan Body Disease Research Foundation (APBDRF) Dedicated to finding a cure for APBD while improving the lives of those affected Donate today to ourend of year campaign Moving the needle for APBD research Sign up for Updates Whats New APBD Community Joins Millions of Rare Advocates Around the World for Rare Disease Day February 24th 2025 CZIs Cycle 1 Rare As One Impact Report Features APBDRFs Work Alongside Peers to Advance Rare Disease Research January 18th 2025 Melanie Robinsons Caregiving Journey Reaches Millions January 17th 2025 Featured YearEnd Giving Campaign 2024 From now until December 31 your gift will have triple the impact. Thanks to a dollarfordollar match from our Board of Directors up to 80000 and an additional 25000 match from Ora Gordon MD MS FACMGG your support goes further than ever. At the APBD Research Foundation we are dedicated to finding a cure for APBD while improving the lives of those impacted. Understanding APBD Research Diagnosed Now What.
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APBD RESEARCH FOUNDATION
We're celebrating National Public Health Week (April 7-13) to raise the profile of rare diseases as a public health priority. APBD is 1 of 10,000 rare diseases affecting over 30 million (or 1 in 10) people in the US -- and 300 million globally. It is also among the 95% of rare diseases that have no FDA-approved treatments.
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APBD RESEARCH FOUNDATION
🌍 Join us for a Special Event. 🌍 We’re excited to partner with Alex TLC and AGSD - UK on the International APBD Patient Chat on June 25, 2025 — a special event for APBD patients aimed at connecting our global community. 🤝 Read more and register here: https://loom.
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Data about organisation
Brooklyn
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Dedicated to finding a cure for APBD, while improving the lives of those impacted.
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