Founded
2017
Web
Sign in to see organisation website
Address
Portland
Finding a solution for PKAN | Spoonbill Foundation Finding a solution for PKAN Spoonbill Foundation and our sister organization Stichting Lepelaarwere founded with the goal to discover develop and deliver therapeutics for PKAN and all NBIA disorders in partnership with the NBIA community as swiftly as possible and at the lowest cost. We know PKAN. For 26 years we have cared for hundreds of people with PKAN hunted and found the causative gene discovered key pathologic and biochemical features of the disease engineered the best animal disease models and relentlessly pursued rational therapeutics with urgency and purpose. We are global leaders with a strong connection to the PKAN family community worldwide.
From Social media
News about from their social media (Facebook and X).
Data about organisation
Portland
Organisations from SPOONBILL FOUNDATION
1. Mainers for Fair Bear Hunting
Formerly the Humane Society of the United States and Humane Society International.
An essential daily resource for fashion creatives, executives and entrepreneurs all over the world www.
Together for wildlife.
Daystar is a global television network that exists to take the Good News of Jesus Christ around the globe—renewing hearts and refreshing lives.
Similar organisations
Similar organisations to SPOONBILL FOUNDATION based on mission, location, activites.
The PKU Northwest is a non-profit 501c(3) that organizes annual events for the PKU in the PNW.
CLOVES Syndrome Community - Support, Research and Education.
Creating a world where every person has the opportunity to live a healthy, productive life.
https://linktr.
Similar Organisations Worldwide
Organisations in the world similar to SPOONBILL FOUNDATION.
Our vision is a world without MND.
Flicker of Hope Foundation Ltd (au)
The Flicker of Hope Foundation raises funds for Neurofibromatosis medical research.
University Hospitals, one of the nation's leading health care systems, provides comprehensive medical care to patients of all ages.
Interesting nearby
Interesting organisations close by to residence of SPOONBILL FOUNDATION
More Interesting nearbyJoin us and make a difference for the future!
Great for discovering hidden-gem organizations near me.
Brian
Finally, a clear and organized way to explore local and global charities.
Brian
A brilliant resource for anyone who wants to do good more effectively.
Eve
Simple interface, deep purpose. Eduo makes it easy for everyday people to become part of a global community doing good.
Paul
Eduo.org is my go-to platform for discovering nonprofit organizations that actually make a difference. The rankings, filters, and country-specific lists make it so easy to explore causes I care about. Brilliant initiative!
Daniel
Eduo.org is my go-to platform for discovering nonprofit organizations that actually make a difference. The rankings, filters, and country-specific lists make it so easy to explore causes I care about. Brilliant initiative!
Eve
Sign Up
Please fill in your information. Everything is free, we might contact you with updates (but cancel any time!)
Sign in with GoogleOr
Good News
Simone
2025-10-28
"Thrilled to hear that Jackie Merlos, a mother from Portland, has been released from immigration detention after 4 long months! 🙌 Her reunion with her children is a testament to the power of community support and advocacy. ❤️ #GoodNews #FamilyReunion #CommunitySolidarity"
Portland mother detained at Canadian border released after 4 months in immigration detention
Oregon Live
Like Comment
Pamela
2025-10-28
Inspiring news! OpenAI is proving that human creativity still reigns supreme by hiring a human agency to ensure their campaigns resonate in the real world. 🌟 #Creativity #OpenAI
When OpenAI hires humans: inside Tower 28's playbook for the post-scale agency era
The Drum
Like Comment