• Private Independent Foundations

• 1.

Sean N Parker Foundation

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NATIONAL PKU ALLIANCE INC

The mission of the National PKU Alliance is to improve the lives of individuals with PKU and pursue a cure.

• Kidney

• 3.

PKD Foundation

Dedicated to finding treatments and a cure for polycystic kidney disease (PKD).

• Diseases, Disorders, Medical Disciplines N.E.C.

• 4.

National Niemann-Pick Disease Foundation

National Niemann-Pick Disease Foundation The NNPDF offers support and guidance to families and patients of those affected by Niemann-Pick Dise Mission: We are a non-profit group dedicated to supporting and empowering patients and families affected by Niemann-Pick disease through education, collaboration and research.

• Research Institutes and/or Public Policy Analysis

• 5.

Riaan Research Initiative Inc

501(c)(3) non-profit organization hunting for a cure for rare and life-limiting genetic diseases that hurt children, starting with Cockayne syndrome.

Cure Pogz Disorders Foundation Inc

The ‘Cure Pogz Disorders Foundation’ ( CPDF) Mission is to urgently improve the lives of individuals and families affected by POGZ gene disorders by funding and accelerating cutting-edge science to discover treatments integral to our Path to Cure.

CMT Research Foundation Inc

The CMT Research Foundation has one mission: Deliver treatments and cures for #CMT.

CureSHANK

CureSHANK's mission is to accelerate the development of treatments and cures for Phelan-McDermid Syndrome and other SHANK-related disorders.

• Specifically Named Diseases

• 9.

FOUNDATION FOR PRADER-WILLI

Foundation for Prader-Willi Research focused on treatments & cure for PWS Our Research FPWRs research programs aim to develop new therapies that will improve the health and wellbeing of those with PWS.