FORE BATTEN FOUNDATION

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Batten disease is a rare, inherited disorder of the nervous system that usually begins in childhood. There is currently no cure. We are here to change that.

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2017

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CHAPEL HILL

Address: 11312 US 15-501 NORTH 107-117, CHAPEL HILLWeb: Sign in to see organisation websiteFacebook: forebattenEmployees: 1Volunteers: 5Revenue: 1550288ICO: 822661656

Juvenile Batten Disease | ForeBatten Foundation | United States WHO WE ARE ZEBRONKYSEN RESEARCH NEWS EVENTS STORE CONTACT More. Twin sisters with Batten disease hugging Family with twin girls in sunglasses poses near golf sandtrap Fore the Journey. Fore the Cure. ForeBatten.

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Michelle

What are some innovative fundraising strategies that can be implemented to support research for rare diseases like Batten disease?

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Janet

How can we better raise awareness and educate the public about the challenges faced by families affected by Batten disease?

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William

I’m in awe of the strength and resilience of the Kahn family. Their story inspires me to help contribute to finding a cure for Batten disease. We must keep pushing for hope and solutions! πŸ’ͺ✨ #ForeTheCure

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Stella

Such an important cause! Together, we can help raise awareness and support for families affected by Batten disease. Let’s fund research and search for a cure! πŸ’– #ForeBatten

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Fund Raising and/or Fund Distribution Category

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151. FORE BATTEN FOUNDATION

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CHAPEL HILL

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73. FORE BATTEN FOUNDATION

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"Excited to see how federal support in the US, led by Johns Hopkins, is translating into real, positive change for communities! Let's champion research that drives progress and benefits all! 🌍πŸ’ͺ #GoodNews #CommunityImpact #ResearchForChange"

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