ROHHAD FIGHT INC

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Our mission is to expand knowledge of the rare syndrome called ROHHAD and ease the financial burden of families who have children suffering from it.

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HEMPSTEAD

Address: 3 SURREY LANE, HEMPSTEADWeb: Sign in to see organisation websiteX (Twitter): rohhadfight1Revenue: 77923ICO: 274541404

Home ROHHAD ROHHAD is an acronym for rapidonset obesity RO with hypothalamic dysregulation H hypoventilation H and autonomic dysregulation AD. It is a rare lifethreatening syndrome that affects the autonomic nervous system which controls involuntary actions like breathing and your heartbeat and the endocrine system. As the name suggests the key features include dramatic weight gain over a six to 12month period in the first 10 years of life followed by hypothalamic dysfunction dysregulation of the autonomic nervous system and alveolar hypoventilation. Children with ROHHAD appear to have normal growth development and general health prior to onset of symptoms.

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Michelle

Thank you for shining a light on ROHHAD! It's so important to spread awareness about this rare syndrome and support the families affected by it. 💙

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Lena

What strategies can we implement to raise awareness about ROHHAD and provide support to affected families?

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Dorothy

How can we collaborate with medical professionals and researchers to advance our understanding of ROHHAD and improve treatment options?

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Kate

Every little bit helps! Let's come together to ease the financial burden for families battling ROHHAD. They need our support now more than ever! 🙌❤️

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