
ROHHAD FIGHT INC
Our mission is to expand knowledge of the rare syndrome called ROHHAD and ease the financial burden of families who have children suffering from it.
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Home ROHHAD ROHHAD is an acronym for rapidonset obesity RO with hypothalamic dysregulation H hypoventilation H and autonomic dysregulation AD. It is a rare lifethreatening syndrome that affects the autonomic nervous system which controls involuntary actions like breathing and your heartbeat and the endocrine system. As the name suggests the key features include dramatic weight gain over a six to 12month period in the first 10 years of life followed by hypothalamic dysfunction dysregulation of the autonomic nervous system and alveolar hypoventilation. Children with ROHHAD appear to have normal growth development and general health prior to onset of symptoms.
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