• Fund Raising and/or Fund Distribution

• 1.

Ssadh Association Inc

SSADH IS AN ORGANIZATION REPRESENTING CHILDREN AND FAMILIES AFFECTED BY A DISEASE OF GABA RELATED NEUROTRANSMITTER METABOLISM.

• Nonmonetary Support N.E.C.*

• 2.

Angels for Alyssa

Angels for Alyssa funds medical research for a rare disease, Methylmalonic Acidemia (MMA), that is being conducted at the National Institutes of Health.

THE MARFAN FOUNDATION INC .

The Marfan Foundation works to save lives and improve the quality of life of individuals with Marfan syndrome and other genetic aortic conditions.

• Birth Defects, Genetic Diseases

• 4.

BOHRING-OPITZ SYNDROME FOUNDATION INC

Bohring-Opitz Syndrome Foundation, Inc.

• Private Grantmaking Foundations

• 5.

Baehr Challenge Ltd

Welcome to the Baehr Challenge Thank you for visiting.

OPMD Association

Advocates for Oculopharyngeal Muscular Dystrophy.

• Alliance/Advocacy Organizations

• 7.

Loeys-Dietz Syndrome Foundation

The LDSF is a 501(c)3 non-profit organization organization dedicated to:--encouraging education about Loeys-Dietz syndrome and related connective tissue disorders to medical professionals and lay communities in order to aid in identification, diagnosis and treatment of Loeys-Dietz syndrome--fostering research about Loeys-Dietz syndrome--providing a support network, for individuals, parents and families affected by Loeys-Dietz syndrome This March were celebrating 20 years since LoeysDietz Syndrome was first identified.

• Specifically Named Diseases

• 8.

The Kennedy Ladd Foundation, Inc.

The Kennedy Ladd Foundation is committed to ending the suffering caused by MPS1, a progressive and life-threatening disease.

• Fund Raising and/or Fund Distribution

• 9.

KNOCKOUT ALD

Knockout ALD is a 501 (c)(3) nonprofit dedicated to raising awareness of and research funds for ALD.