Shay Emma Hammer Research Foundation

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We’re working to document the first 1000 cases of SCN8A gene variants and connect families

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Address: 7247 E 3rd Street, TucsonWeb: Sign in to see organisation websiteFacebook: scn8aICO: 823735429

Shays Gift – Shays Gift Advancing epilepsy awareness. Finding better treatments. Shay Emma Hammer was the first known case in the world of a rare childhoodepilepsy disorder known as SCN8A. Read how her journey has helped hundredsof children and families around the world.

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Yvonne

Incredible work being done by the Shay Emma Hammer Research Foundation! It’s inspiring to see how you’re connecting families and advancing epilepsy awareness. Together, we can make a difference! 💜🙌

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James

1. How can we improve engagement and support for families affected by SCN8A gene variants in the global community?

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Anna

Thank you, SEHRF, for your dedication to improving the lives of children with SCN8A gene variants. Your commitment to research and support for families is truly remarkable! Let’s keep spreading awareness! 🌟📚

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Catherine

2. What role does public awareness play in advancing research and treatments for rare childhood epilepsy disorders like SCN8A?

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Epilepsy Research Category

Organisations with similar rank to Shay Emma Hammer Research Foundation in category Epilepsy Research

3. Chelsea's Hope Lafora Children Research Fund

Our mission is to improve the lives of those affected by Lafora disease and help accelerate the development of treatments.

4. Shay Emma Hammer Research Foundation

We’re working to document the first 1000 cases of SCN8A gene variants and connect families.

5. Lightning and Love Foundation

Two sisters battling one Ultra-Rare Disease.

6. Lilys Lighthouse Inc

We're a family-led, 501(c)(3) non-profit funding research into functional mushrooms for epilepsy .

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428. Shay Emma Hammer Research Foundation

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