• Epilepsy

• 1.

Epilepsy Study Consortium Inc

Home Our Mission The Epilepsy Study Consortium TESC is a group of scientific investigators from academic medical research centers who are dedicated to accelerating the development of new therapies in epilepsy to improve patient care.

AMERICAN EPILEPSY SOCIETY

American Epilepsy Society We are a community of professionals engaged in the understanding diagnosis study prevention treatment and cure with the goal of improving outcomes for persons with epilepsy.

• Single Organization Support

• 3.

Angels4Epilepsy Inc

Angels4Epilepsy, Inc. delivers smiles to children hospitalized.

Decoding Developmental Epilepsies

We serve two distinct communities. First, we serve those living with SCN8A and their families.

Kcnq2 Cure Alliance Inc

Our promise is to educate and to advance research leading to treatments or a cure for patients living with the genetic disorder KCNQ2 Raising awareness, educating, and advancing research for KCNQ2 Developmental and Epileptic Encephalopathy.

• Alliance/Advocacy Organizations

• 6.

Finding Nori Foundation

The Finding Nori Foundation Home About Meet the Team Finding Joy Blog Resources Publications DONATE Contact Upcoming Events More Raising research funding for PAX5 and ALG13 related neurological disordersEmpowering families with ultra rare undiagnosed diseases to find answers Our Mission Our mission is to advance scientific research through fundraising and advocacy for ultra rare undiagnosed genetic disorders.

Lightning and Love Foundation

Founder of Lightning and Love foundation and mom to two ultra-rare THAP12 genetic epilepsy disease daughters searching for a cure.

• Specifically Named Diseases Research

• 8.

SLC6A1 CONNECT

People Magazine Exclusive Milestones for Maxwell What if your child was diagnosed with a disease so rare it didnt have a name.

• Birth Defects, Genetic Diseases

• 9.

STXBP1 FOUNDATION

Non-profit dedicated to ending STXBP1-related disorders, rare neurodevelopmental and epileptic encephalopathies, and spreading awareness of this rare disease.