Smashsmard, Inc.

Follow Message Edit

SMARD1 is an inherited condition that causes muscle weakness and respiratory failure typically beginning in infancy. We are on a mission for a CURE! smashSMARD was started to bring a permanent end to SMARD, CMT2S and IGHMBP2-related disorders. 100% of every donation is being used to develop a life-saving gene therapy for those affected. smashSMARD is a non-profit 501(c)3 organization which mission is to increase awareness of SMARD1 and the IGHMBP2 gene mutation in order to fund research that will lead to treatments and cures.

Founded

2018

Facebook

3065

X (Twitter)

134

Address

Lincolnshire

Address: 6 Exmoor Lane, LincolnshireWeb: Sign in to see organisation websiteFacebook: smashSMARDX (Twitter): smashSMARDRevenue: 71824ICO: 825388567

smashSMARD | SMARD1 Let39s Make a Change Let39s Make a Change Home About About SMARD Research Blog More. smashSMARD Outside of Facebook Donate on Facebook no fees Exciting Announcement. smahSMARD is proud to make the most exciting announcement yet that the first ever therapy for IGHMBP2related disorders has been granted approval for a clinical trial to begin. In 2018 smashSMARD and smashSMARD.

News & Updates XX

From Social media

News about from their social media (Facebook and X).

Andrea

This is incredible news about the clinical trial approval! It’s so inspiring to see dedicated organizations like smashSMARD making a real difference. Together, we will find a solution! 🌟 #CureSMARD #Hope

Like Comment
Patrick

2. How can we raise awareness about rare genetic disorders like SMARD1 and encourage more community engagement in supporting research initiatives?

Like Comment
Ray

So proud of the progress smashSMARD is making! Every step brings us closer to a cure for those impacted by these devastating disorders. Let’s keep pushing for change! 💪❤️ #SmashSMARD

Like Comment
John

1. What are some innovative fundraising strategies that NGOs like smashSMARD can implement to increase donations for gene therapy research?

Like Comment
Collected information

Data about organisation

Nerve, Muscle, and Bone Diseases Category

Organisations with similar rank to Smashsmard, Inc. in category Nerve, Muscle, and Bone Diseases

75. Back Mountain Chamber Inc

Commerce • Community • Culture.

76. Smashsmard, Inc.

smashSMARD was started to bring a permanent end to SMARD, CMT2S and IGHMBP2-related disorders.

77. Sosort

International Society on Scoliosis Orthopaedic and Rehabilitation Treatment.

More from Nerve, Muscle, and Bone Diseases

Neurology, Neuroscience Category

Organisations with similar rank to Smashsmard, Inc. in category Neurology, Neuroscience

44. Friends of Parkinsons Inc

Friends of Parkinson's is a non-profit organization that provides a resource center, outreach awareness, and support groups for people with Parkinson's.

45. Smashsmard, Inc.

smashSMARD was started to bring a permanent end to SMARD, CMT2S and IGHMBP2-related disorders.

46. Myasthenia Gravis Association of Western Pennsylvania (MGA)

MGA of WPA is a Treatment and Advocacy Center for those affected by Myasthenia Gravis.

47. PCDH19 Alliance

Our mission is to improve the lives of children and families who are affected by PCDH19 Epilepsy.

More from Neurology, Neuroscience

Pediatrics Category

Organisations with similar rank to Smashsmard, Inc. in category Pediatrics

99. The Lexiebean Foundation

The Lexiebean Foundation 11 Gates Avenue Plainview, NY 11803 www.

100. Cedarcrest Foundation Inc

Cedarcrest is a specialized medical facility and school in Keene, New Hampshire, that provides round-the-clock skilled nursing care, special education at Cedarcrest School, and speech, occupational and physical therapies.

101. Smashsmard, Inc.

smashSMARD was started to bring a permanent end to SMARD, CMT2S and IGHMBP2-related disorders.

102. Nebraska Early Childhood Collaborative

Providing support, resources, and training to strengthen early learning across Nebraska.

103. THE CLINIC FOR SPECIAL CHILDREN INC

A nonprofit comprehensive medical practice focused on treating & researching rare genetic disorders.

More from Pediatrics

Lincolnshire

Organisations from Smashsmard, Inc.

5. Selected Independent Funeral Homes Educational Trust

Selected represents the best and the brightest independent funeral businesses and funeral professionals around the world.

6. Selected Independent Funeral Homes

Selected represents the best and the brightest independent funeral businesses and funeral professionals around the world.

7. Smashsmard, Inc.

smashSMARD was started to bring a permanent end to SMARD, CMT2S and IGHMBP2-related disorders.

9. Pinta Pride Project Inc

The Pinta Pride Project aims to encourage more LGBT visibility and events in the Chicago and surrounding suburban areas.

More from Lincolnshire

Similar organisations

Similar organisations to Smashsmard, Inc. based on mission, location, activites.

International Skeletal Society Inc

The ISS is dedicated to the learning, understanding, and teaching of musculoskeletal disorders.

FAMILIAL DYSAUTONOMIA NOW FOUNDATION

FD NOW is a 501c3 non-profit organization dedicated to funding the fast-track research at the Laboratory for Familial Dysautonomia Research at Fordham University in New York, USA.

More Similar Organisations

Similar Organisations Worldwide

Organisations in the world similar to Smashsmard, Inc..

Action FCS (uk)

Patient-led organisation for people with Familial Chylomicronaemia Syndrome, we were previously called LPLD Alliance.

Paediatrio Ltd (au)

The Luminesce Alliance is a world-leading paediatric research co-operative, established to harness the strengths of its partner organisations to unlock future prevention, treatments and ultimately, cures, for childhood illnesses.

More Similar Organisations Worldwide

Interesting nearby

Interesting organisations close by to residence of Smashsmard, Inc.

FAMILIAL DYSAUTONOMIA NOW FOUNDATION

FD NOW is a 501c3 non-profit organization dedicated to funding the fast-track research at the Laboratory for Familial Dysautonomia Research at Fordham University in New York, USA.

Cure SMA

Cure SMA is dedicated to the treatment and cure of spinal muscular atrophy (SMA).

The Foundation for Peripheral Neuropathy

Our purpose: to improve the lives of patients living with peripheral neuropathy.

More Interesting nearby

Similar social media (3199)

Organisations with similar social media impact to Smashsmard, Inc.

101636. Camp Putnam Inc

The Care and Share Camp.

101637. Terri Brodeur Breast Cancer Foundation Inc

To learn how to support TBBCF efforts through donations and events (like the Walk For a Cure.

101638. Smashsmard, Inc.

smashSMARD was started to bring a permanent end to SMARD, CMT2S and IGHMBP2-related disorders.

101639. The United Way of Charles County, Inc.

We build the strength of our neighborhoods.

101640. Williston Basin Resource Coalition

Helping those with health challenges across North Dakota.

Similar social media
Join us

Join us and make a difference for the future!

I work in a nonprofit and listing our organization on Eduo.org helped us reach new audiences and even new volunteers. It’s easy to use and feels built with love.

Brooklyn Simmons
Lucy

What I appreciate most about Eduo is its neutrality and inclusivity. It doesn't push any agenda — just provides tools for people to explore and support what matters to them.

Brooklyn Simmons
Daniel

Eduo is where compassion meets clarity.

Brooklyn Simmons
Paul

Finally, a platform that brings transparency and accessibility to the nonprofit world. Eduo makes it simple to see who’s doing meaningful work and how to get involved.

Brooklyn Simmons
Michelle

Like Wikipedia for nonprofits — but even more inspiring.

Brooklyn Simmons
Michelle

I found my favorite volunteer opportunity thanks to Eduo!

Brooklyn Simmons
Janet
Sign Up

Please fill in your information. Everything is free, we might contact you with updates (but cancel any time!)

Sign in with Google
Or
Collected information

Good News

Renata 2025-10-24

🌍 Exciting news! The UAE has just broken ground on the world's first gigascale round-the-clock renewable energy project! 🌱 This groundbreaking initiative sets a new global standard for clean energy, showcasing the power of innovation for a sustainable future. Let's continue to support and celebrate such positive advancements in renewable energy! #CleanEnergy #Sustainability

UAE Breaks Ground on World's First Gigascale Round-the-Clock Renewable Energy Project, Setting a New Global Standard For Clean Energy

Benzinga

Like Comment
Hannah 2025-10-24

🌟 Exciting news! Hayati® is expanding its "Warm Night" project to support those in need during the cold season. On #WorldHomelessDay, they're reaffirming their commitment to help the homeless across the UK. Let’s spread warmth and kindness! ❤️ #GoodNews #CommunitySupport #NonProfit

Hayati® Expands "Warm Night" Project to Support People Through Cold Season Across the UK

Benzinga

Like Comment
Michael 2025-10-24

P.E.I. Advisory Council on the Status of Women marks 50 years of advocating for equality

Yahoo

Like Comment