• Fund Raising and/or Fund Distribution

• 1.

Cure Lgmd 2T Inc

🧬 Genetic Testing Access 🗒️ Patient Registry 🔬 Advancing and Funding Research 📚 Educating & Raising Awareness Help Us Cure LGMD 2T Limb Girdle Muscular Dystrophy Our mission is dedicated to raising awareness for Limb Girdle Muscular Dystrophy 2T and providing critical funding for research into effective treatments.

Cure SMA

Funding groundbreaking research for SMA.

• Education N.E.C.

• 3.

Spinal Muscular Atrophy Foundation

The mission of the Spinal Muscular Atrophy Foundation is to accelerate the development of a treatment for SMA, the number one genetic killer of infants and toddlers.

• Nerve, Muscle, and Bone Research

• 4.

Lgmd2L Foundation

We’re a nonprofit searching for a cure for LGMD2L, a rare disease that causes muscle weakness and atrophy, pain, and eventually leads to many sufferers being unable to walk.

• Specifically Named Diseases

• 5.

SETBP1 Society

President of SETBP1 Society and Parent Advocate for SETBP1-HD SETPB1 Society's mission is to provide support to individuals with SETBP1 haploinsufficiency disorde Our Mission is to provide support to individuals with SETBP1 disorder and their families, to promote discussion and fund research, and to bring awareness and education to the public.

CureLGMD2i Foundation

The CureLGMD2i Foundation strives to raise awareness and to support scientific research that is geared directly toward finding a treatment or cure for Limb Girdle Muscular Dystrophy type 2i (LGMD2i).

• Birth Defects, Genetic Diseases

• 7.

Iqsec2 Research and Advocacyfoundation

Welcome to IQSEC2. ORG Research and Advocacy Foundation MISSION STATEMENT Vision In the next 10 years we will dramatically improve the quality of life for those affected by IQSEC2 mutations through 1 the establishment and dissemination of standard treatment and therapy protocols to medical practitioners and therapists worldwide 2 support of research and development of new and innovative treatments for IQSEC2 related diseases and 3 uplift support all loved ones of those affected by IQSEC2 through an advocate community and its allies.

• Specifically Named Diseases Research

• 8.

Dion Foundation for Children with Rare Diseases Inc

Support research. Find a cure. Help children and families fight rare diseases.

• Other Medical Research N.E.C.

• 9.

FRIEDREICH'S ATAXIA RESEARCH ALLIANCE

Together, we will cure Friedreich's ataxia.