Ctx Alliance NFP
CTX Alliance – Cerebrotendinous Xanthomatosis
871964096
Lansdale, PA 19446 United States
ctxalliance.org
ctxalliance
ctxalliance
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News
Happy Mother’s Day to all the mom and mother figures out there. This day is all about celebrating you. Thank you for all you do! #CTX #CTXAlliance #ULF #CerebrotendinousXanthomatosis #Leukodystrophy #RareDisease https://t.co/wV8YFAtDky (tw)
Join ULF Ambassadors Margaret Halter and Roger Locy to connect with other caregivers. Discuss ways to deal with the common stressors that caregivers face in a safe, non-judgmental environment. Visit here for details: https://t.co/u9CWzImuzg #CTX #CTXAlliance #ULF #RareDisease https://t.co/ZxwYMnhHhK (tw)
Poslední diskuze
Nearby
4.5
Lansdale
About the organization
- G01 -
Providing education support advocacy and promoting researchfor CTX patients their families and medical professionalswho treat and study this rare disease. 2025 International CTX Workshop Series Join us in Kyoto Japan for the upcoming international meeting where global collaboration drives progress in CTX care research and supportempowering patients and families to live their best and healthiest lives. Latest Articles Unlock CTX CTX Testing ULF Partnership Join the CTX Alliance The CTX Alliance is a newlyformed patient organization solely dedicated to providing resources support and promoting research for CTX patients families and healthcare providers. Join our mailing list to receive information and news as we begin to gather and expand the CTX community.
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