Ctx Alliance NFP
Providing education, support, advocacy, and promoting research for CTX patients, their families, and medical professionals who treat and study this rare disease Providing education, support, advocacy, and promoting research for CTX patients, their families, and medical professionals who treat and study this rare disease. Education advocacy and promote research for CTX
ICO
871964096
58
X (Twitter)
12
Address
Lansdale
CTX Alliance – Cerebrotendinous Xanthomatosis Providing education support advocacy and promoting researchfor CTX patients their families and medical professionalswho treat and study this rare disease. 2025 International CTX Workshop Series Join us in Kyoto Japan for the upcoming international meeting where global collaboration drives progress in CTX care research and supportempowering patients and families to live their best and healthiest lives. Latest Articles Unlock CTX CTX Testing ULF Partnership Join the CTX Alliance The CTX Alliance is a newlyformed patient organization solely dedicated to providing resources support and promoting research for CTX patients families and healthcare providers. Join our mailing list to receive information and news as we begin to gather and expand the CTX community.
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Alliance/Advocacy Organizations Category
Organisations with similar rank to Ctx Alliance NFP in category Alliance/Advocacy Organizations
Providing education, support, advocacy, and promoting research for CTX patients, their families, and medical professionals who treat and study this rare disease.
The purpose of the Bria T.
Lansdale
Organisations from Ctx Alliance NFP
27. Noel Soccer Foundation Inc
We are determined to bring the game of soccer back into the local communities of Philadelphia & Jacksonville as our legacy leaders did many decades ago.
Providing education, support, advocacy, and promoting research for CTX patients, their families, and medical professionals who treat and study this rare disease.
30. No Strings Attached Guitars Incorporated
Matching guitars with aspiring musicians.
31. Community Youth Foundation
A non-profit that supports initiatives and programs for Montgomery County youth through donations and.
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Promoting education, advocacy and the search for the cure for Primary Ciliary Dyskinesia.
Alliance to Cure Cavernous Malformation, is a patient advocacy organization for those affected by cavernous malformations (cavernoma, cavernous angioma).
Advocacy, awareness and support for those affected by #pheochromocytoma/ #paraganglioma.
Aplastic Anemia and MDS International Foundation
Fighting Bone Marrow Failure Diseases through Patient Support and Research -Aplastic Anemia, MDS, PNH.
Similar Organisations Worldwide
Organisations in the world similar to Ctx Alliance NFP.
INTERNATIONAL ALLIANCE OF PATIENTS' ORGANIZATIONS (uk)
A global alliance representing patients of all nations across all disease areas and promoting patient-centred healthcare across the world.
Genetic Alliance Australia Ltd (au)
Genetic Alliance Australia facilitates support for those affected directly or indirectly by genetic conditions or rare diseases.
Emerge Australia Incorporated (au)
Providing hope & help for people living with myalgic encephalomyelitis/chronic fatigue syndrome.
Interesting nearby
Interesting organisations close by to residence of Ctx Alliance NFP
Scarring Alopecia Foundation (SAF) is a nonprofit public charity organization and the world's only v.
Acting Without Boundaries is a year round theater program for children, teens ,and young adults with.
Smell and Taste Association of North America
We are a patient advocacy group formed in 2020 to improve the quality-of-life for people with smell a.
Similar social media (70)
Organisations with similar social media impact to Ctx Alliance NFP
238220. Cincinnati Achievement Academy
Cincinnati Achievement Academy is a K-8 school located in the Mt.
Providing education, support, advocacy, and promoting research for CTX patients, their families, and medical professionals who treat and study this rare disease.
238222. Palm Beach Economic Crime Unit Inc
501(c)(3) charity assisting law enforcement & civilian investigators to investigate financial crimes.
TechStart is a 501(c)3 nonprofit that promotes wider access to technology education for K-12 students in order to strengthen the skills they need to thrive in the global economy.
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