Ctx Alliance NFP

Follow Message Edit

Providing education, support, advocacy, and promoting research for CTX patients, their families, and medical professionals who treat and study this rare disease Providing education, support, advocacy, and promoting research for CTX patients, their families, and medical professionals who treat and study this rare disease. Education advocacy and promote research for CTX

ICO

871964096

Facebook

58

X (Twitter)

12

Address

Lansdale

Address: 454 Printer Way, LansdaleWeb: Sign in to see organisation websiteFacebook: ctxallianceX (Twitter): ctxallianceRevenue: 116435ICO: 871964096

CTX Alliance – Cerebrotendinous Xanthomatosis Providing education support advocacy and promoting researchfor CTX patients their families and medical professionalswho treat and study this rare disease. 2025 International CTX Workshop Series Join us in Kyoto Japan for the upcoming international meeting where global collaboration drives progress in CTX care research and supportempowering patients and families to live their best and healthiest lives. Latest Articles Unlock CTX CTX Testing ULF Partnership Join the CTX Alliance The CTX Alliance is a newlyformed patient organization solely dedicated to providing resources support and promoting research for CTX patients families and healthcare providers. Join our mailing list to receive information and news as we begin to gather and expand the CTX community.

News & Updates XX

From Social media

News about from their social media (Facebook and X).

Brian

Excited for the 2025 International CTX Workshop in Kyoto! 🗾 Collaboration is key in making a difference for CTX patients. Can’t wait to see the amazing progress that comes from this event! #CTXAlliance

Like Comment
Denise

What strategies can the CTX Alliance implement to engage and educate healthcare professionals about the importance of recognizing and treating CTX effectively?

Like Comment
Margaret

Such an important mission! 🌍 Together, we can empower CTX patients and their families while advancing crucial research. Let’s keep the momentum going! 💪❤️

Like Comment
Clara

How can the CTX community leverage social media to raise awareness and support for research initiatives, especially in the lead-up to the 2025 International CTX Workshop in Kyoto?

Like Comment
Collected information

Data about organisation

Alliance/Advocacy Organizations Category

Organisations with similar rank to Ctx Alliance NFP in category Alliance/Advocacy Organizations

331. Ctx Alliance NFP

Providing education, support, advocacy, and promoting research for CTX patients, their families, and medical professionals who treat and study this rare disease.

332. Bria T Chism Foundation

The purpose of the Bria T.

More from Alliance/Advocacy Organizations

Lansdale

Organisations from Ctx Alliance NFP

27. Noel Soccer Foundation Inc

We are determined to bring the game of soccer back into the local communities of Philadelphia & Jacksonville as our legacy leaders did many decades ago.

29. Ctx Alliance NFP

Providing education, support, advocacy, and promoting research for CTX patients, their families, and medical professionals who treat and study this rare disease.

30. No Strings Attached Guitars Incorporated

Matching guitars with aspiring musicians.

31. Community Youth Foundation

A non-profit that supports initiatives and programs for Montgomery County youth through donations and.

More from Lansdale

Similar organisations

Similar organisations to Ctx Alliance NFP based on mission, location, activites.

PCD KS FOUNDATION

Promoting education, advocacy and the search for the cure for Primary Ciliary Dyskinesia.

Angioma Alliance

Alliance to Cure Cavernous Malformation, is a patient advocacy organization for those affected by cavernous malformations (cavernoma, cavernous angioma).

PHEO ALLIANCE

Advocacy, awareness and support for those affected by #pheochromocytoma/ #paraganglioma.

Aplastic Anemia and MDS International Foundation

Fighting Bone Marrow Failure Diseases through Patient Support and Research -Aplastic Anemia, MDS, PNH.

More Similar Organisations

Similar Organisations Worldwide

Organisations in the world similar to Ctx Alliance NFP.

Genetic Alliance Australia Ltd (au)

Genetic Alliance Australia facilitates support for those affected directly or indirectly by genetic conditions or rare diseases.

INTERNATIONAL ALLIANCE OF PATIENTS' ORGANIZATIONS (uk)

A global alliance representing patients of all nations across all disease areas and promoting patient-centred healthcare across the world.

Emerge Australia Incorporated (au)

Providing hope & help for people living with myalgic encephalomyelitis/chronic fatigue syndrome.

More Similar Organisations Worldwide

Interesting nearby

Interesting organisations close by to residence of Ctx Alliance NFP

Scarring Alopecia Foundation

Scarring Alopecia Foundation (SAF) is a nonprofit public charity organization and the world's only v.

Acting Without Boundaries

Acting Without Boundaries is a year round theater program for children, teens ,and young adults with.

Smell and Taste Association of North America

We are a patient advocacy group formed in 2020 to improve the quality-of-life for people with smell a.

More Interesting nearby

Similar social media (70)

Organisations with similar social media impact to Ctx Alliance NFP

238220. Cincinnati Achievement Academy

Cincinnati Achievement Academy is a K-8 school located in the Mt.

238221. Ctx Alliance NFP

Providing education, support, advocacy, and promoting research for CTX patients, their families, and medical professionals who treat and study this rare disease.

238222. Palm Beach Economic Crime Unit Inc

501(c)(3) charity assisting law enforcement & civilian investigators to investigate financial crimes.

238223. Techstart

TechStart is a 501(c)3 nonprofit that promotes wider access to technology education for K-12 students in order to strengthen the skills they need to thrive in the global economy.

Similar social media
Join us

Join us and make a difference for the future!

Eduo.org helped me discover a small local organization doing amazing environmental work that I would’ve never found otherwise. It’s a hidden gem for socially conscious people.

Brooklyn Simmons
Pamela

As a volunteer, I love how Eduo.org empowers people to contribute locally. It feels like Wikipedia for good deeds — written by the people, for the people.

Brooklyn Simmons
Patrick

Like Wikipedia for nonprofits — but even more inspiring.

Brooklyn Simmons
Joanna

I stumbled on Eduo by accident and ended up spending hours learning about different charities across the world. It’s like a global map of goodness

Brooklyn Simmons
Pamela

Clean, community-driven, and full of heart — love it.

Brooklyn Simmons
Eve

Great for discovering hidden-gem organizations near me.

Brooklyn Simmons
Janet
Sign Up

Please fill in your information. Everything is free, we might contact you with updates (but cancel any time!)

Sign in with Google
Or
Collected information

Good News

Sylvie 2025-10-28

'A rising tide lifts all boats': Inside the ECB's push to elevate women's cricket

The Drum

Like Comment
Dáša 2025-10-28

"Congratulations to Danisha Lomax on being named to the 2024 Advertising Hall of Achievement! 🌟 Her commitment to creativity and inclusion truly inspires us all to integrate purpose into business! #GoodNews #PositiveChange"

Judge of the Day: Digitas's Danisha Lomax encourages purpose as a business strategy

The Drum

Like Comment
Olga 2025-10-28

Inspired by Drew Vernon's insights on meaningful play, let's continue to champion creativity and connection in education! 🎨✨ #PurposefulPlay #EducationMatters

Judge of the Day: Drew Vernon - why purpose is about doing not polishing

The Drum

Like Comment