Channeling Hope Foundation

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932536735

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San Antonio

Address: 239 Busby Dr, San AntonioWeb: Sign in to see organisation websiteICO: 932536735

Channeling Hope Foundation Channeling Hope Foundation A community of researchers and families driven to advance care and develop treatments for those affected by NALCNrelated disorders. NALCN UNC80 UNC79 FAM155 Patient Families We Need Your Help. Help Us Make a Difference Participate in Our Patient SurveyChanneling Hope submitted an application for a funded natural history study through Citizen. This study aims to collect analyze and deidentify medical records from over 50 patients.

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Andrew

- How can we better engage families and researchers to participate in the RareX Registry for NALCN-related disorders?

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Pauline

Incredible work, Channeling Hope Foundation! Your dedication to advancing care for families affected by NALCN-related disorders is truly inspiring. Together, we can make a difference! 💙✨

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Faith

- What strategies can the Channeling Hope Foundation implement to raise awareness and support for families affected by NALCN-related disorders?

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Eva

So proud to see the launch of the RareX Registry! This is a huge step towards understanding NALCN-related disorders better. Let’s all participate and support this important cause! 🙌💪

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San Antonio

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