• Diseases, Disorders, Medical Disciplines N.E.C.

• 1.

U R Our Hope

Non-profit serving individuals with undiagnosed & rare disorders through education, advocacy, and support in order to bring hope through knowledge, empowerment Assisting those with undiagnosed or rare disorders at any age and any stage.

• Fund Raising and/or Fund Distribution

• 2.

Harmony 4 Hope

Leading Nonprofit Mobilizing Community & Raising Funds 4 Rare Disease through the Universal Power of Music & Storytelling.

Rare New England Inc

Rare New England's Mission is to bring together New England patients and families touched by rare and complex disorders.

• Management & Technical Assistance

• 4.

Pathways Corp

To elevate the patient's voice to increase access to care and eliminate bias by bringing stakeholders together Home Our Team Events Initiatives Partners Media Kit Contact More Its Time to Listen to the Rare Disease Community.

• Alliance/Advocacy Organizations

• 5.

Trpm3 Foundation

Patient advocacy and support for those affected by #TRPM3 #ionchannel related disorders.

• Alliance/Advocacy Organizations

• 6.

Rare-X

PATIENTS' DATA POWERING PROGRESS - RARE-X is expected to become the largest data-sharing initiative focused on rare diseases.

• Fund Raising and/or Fund Distribution

• 7.

Undiagnosed Diseases Network Foundation (UDNF)

Improving access to diagnosis, research, and care for all with undiagnosed and ultra-rare conditions.

• Alliance/Advocacy Organizations

• 8.

Ctx Alliance NFP

Providing education, support, advocacy, and promoting research for CTX patients, their families, and medical professionals who treat and study this rare disease Providing education, support, advocacy, and promoting research for CTX patients, their families, and medical professionals who treat and study this rare disease.

• Fund Raising and/or Fund Distribution

• 9.

BENEFIT OTHERS FOUNDATION

Helping to overcome hardships and providing opportunities for children and their families Who We Are Benefit Others Foundation is a nonprofit 501c3 organization committed to enriching the lives of others.