Rare Sisters Batten Foundation Inc

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A rare, fatal, neurological disease that affects sisters Cecilia and Lilly. The Rare Sisters Batten THE RARE SISTERS BATTEN FOUNDATION AIMS TO HELP FURTHER THE DEVELOPMENT OF MEDICAL RESEARCH FOR TREATMENTS AND CURES FOR CLN3 BATTEN DISEASE, AND PROVIDE MONETARY ASSISTANCE TO FAMILIES WITH CHILDREN DIAGNOSED WITH BATTEN DISEASE.

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2020

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1700

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Arvada

Address: PO Box 764561, ArvadaWeb: Sign in to see organisation websiteFacebook: raresistersRevenue: 283979ICO: 844406415

Batten Disease | Rare Sisters HOME ABOUT EVENTS DONATE APPLY FOR FUNDS SHOP CONTACT More The Rare Sisters BattenFoundation aims tohelpfurther the development of medical research for treatments and cures for CLN3 Batten Disease and provide monetary assistance to families with children diagnosed with Batten Disease. Financial assistance for familiescan be given for any needs the family encounters due to Batten Disease no request is too big or too small. On January 3rd 2018 Cecilia and Lilly were diagnosed with CLN3 Batten Disease. Batten disease is a neurodegenerative disorder.

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Catherine

Your strength, courage, and love shine through every step of this heart-wrenching journey. We're all behind you, Cecilia and Lilly, and together we can help raise awareness and support for this important cause! 💖✨

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Bonnie

Every little bit helps in the fight against Batten Disease. Let’s unite to make a difference for families facing this challenge. Remember, no request is too big or too small. Together, we can bring hope! 🙌💜

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Hannah

How can we engage the community to better understand and support the challenges faced by families dealing with neurodegenerative disorders like Batten Disease?

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Miles

What innovative fundraising ideas could we implement to raise awareness and support for families affected by CLN3 Batten Disease?

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