• Fund Raising and/or Fund Distribution

• 1.

Melissa Froio Foundation Inc

THE ORGANIZATIONS PRIMARY EXEMPT PURPOSE IS TO RAISE FUNDS FOR RESEARCH FOR BATTEN'S DISEASE THROUGH THE BATTEN'S DISEASE FOUNDATION AND TO PROVIDE ASSISTANCE TO THE ST.

• Fund Raising and/or Fund Distribution

• 2.

Taylors Tale

Taylor's Tale is a public charity dedicated to the fight against CLN1 disease and other rare diseases.

BEYOND BATTEN DISEASE FOUNDATION

Mission: eradicate Batten disease. Batten disease is a fatal neurodegenerative disorder that takes away childhood, and then takes away.

• Brain Disorders

• 4.

NOAHS HOPE HOPE 4 BRIDGET FOUNDATION

The mission of the Noah's Hope – Hope4Bridget Foundation is to raise funds in support of scientific research, and inform the community about Batten Disease.

• Fund Raising and/or Fund Distribution

• 5.

Eleanor Kaplan Foundation Inc

To raise funds and awareness to develop cures for Ultra Rare Neurodegenerative Diseases.

• Alliance/Advocacy Organizations

• 6.

Charlotte and Gwenyth Gray Foundation

Sisters, Charlotte & Gwenyth, were diagnosed w/ Batten Disease, a rare & fatal brain disease.

• Specifically Named Diseases

• 7.

Andrews Firefly Fund

A nonprofit that provides crucial support for research and education necessary to accelerate cures for rare genetic diseases that affect children.

Lightning and Love Foundation

Founder of Lightning and Love foundation and mom to two ultra-rare THAP12 genetic epilepsy disease daughters searching for a cure.

• Fund Raising and/or Fund Distribution

• 9.

FORE BATTEN FOUNDATION

Batten disease is a rare, inherited disorder of the nervous system that usually begins in childhood.