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The Butterfly Children Fund The Butterfly Children Fund Dedicated to improving the quality of lives of children with Epidermolysis Bullosa HOW WE SUPPORT The Butterfly Children Fund is dedicated to supporting families impacted by EB and creating hope and change for the EB Community through financial assistance the Camp Spirit Colorado experience and helping to support and further research efforts. WHO WE ARE The Butterfly Children Fund is a nonprofit organization with a goal of raising awareness advancing fundraising efforts and improving the quality of life for families of children with Epidermolysis Bullosa. ABOUT EPIDERMOLYSIS BULLOSA Referred to as EB this rare genetic skin disease impacts approximately 25000 individuals and affects the collagen protein which is the glue that binds the skin layers together. Think of the skin as a lawn of grass without its roots it is unable to hold the grass in place.