Butterfly Children Fund Corp

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Winter adventure camp for children with Recessive Dystrophic Epidermolysis Bullosa. SEE SCHEDULE O

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812541996

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Golden

Address: 2429 Bitterroot Ln, GoldenWeb: Sign in to see organisation websiteFacebook: CampspiritcoloradoICO: 812541996

The Butterfly Children Fund The Butterfly Children Fund The Butterfly Children Fund Dedicated to improving the quality of lives of children with Epidermolysis Bullosa HOW WE SUPPORT The Butterfly Children Fund is dedicated to supporting families impacted by EB and creating hope and change for the EB Community through financial assistance the Camp Spirit Colorado experience and helping to support and further research efforts. WHO WE ARE The Butterfly Children Fund is a nonprofit organization with a goal of raising awareness advancing fundraising efforts and improving the quality of life for families of children with Epidermolysis Bullosa. ABOUT EPIDERMOLYSIS BULLOSA Referred to as EB this rare genetic skin disease impacts approximately 25000 individuals and affects the collagen protein which is the glue that binds the skin layers together. Think of the skin as a lawn of grass without its roots it is unable to hold the grass in place.

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John

1. What are some innovative fundraising strategies that could be implemented to support winter adventure camps for children with Epidermolysis Bullosa?

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Luke

I love how youโ€™re creating a supportive community for children with EB! Itโ€™s so important for them to have experiences like this. Count me in for supporting this incredible initiative! ๐Ÿฆ‹๐ŸŒŸ

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Victor

2. How can we better raise awareness about Epidermolysis Bullosa and its impact on families to create a more supportive community?

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Christina

What an amazing opportunity for the kids! Can't wait to see them make beautiful memories and enjoy winter sports together. Thank you, Butterfly Children Fund, for making this possible! โ„๏ธ๐Ÿ’–

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DEBRA Australia (au)

DEBRA is an Australian charity that supports individuals, families & carers affected by Epidermolysis Bullosa (EB), a rare genetic condition which causes the skin to blister at the slightest friction or even spontaneously.

DYSTROPHIC EPIDERMOLYSIS BULLOSA RESEARCH ASSOCIATION OF CANADA (DEBRA CANADA) (ca)

DEBRA Canada is a voluntary, registered charitable organization dedicated to providing support for families affected by Epidermolysis Bullosa (EB) and to increasing Canadians' awareness of this challenging disease.

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