• Remedial Reading, Reading Encouragement

• 1.

Firefly Fund

A nonprofit that provides crucial support for research and education necessary to accelerate cures for rare genetic diseases that affect children.

SOS EB KIDS CORP

“Nossa missão é aliviar o sofrimento das crianças brasileiras com epidermólise bolhosa, aumentando sua qualidade de vida e a daqueles com quem convivem".

• Patient Services�Entertainment, Recreation

• 3.

EB Hope Foundation

The foundation exists to promote awareness of Epidermolysis Bullosa (EB) and generate monetary support for research and the care of EB patients.

• Health Support Services

• 4.

Heal Child Skin Disease Foundation

The Heal Child Skin Disease Foundation The Heal Child Skin Disease Foundation is a non-profit organization, seeking to directly help those affected by severe skin diseases and more specifically Epidermolysis Bullosa (EB).

• Alliance/Advocacy Organizations

• 5.

Bethanys Butterflies Foundation Inc

Our vision is that every child with a severe or complex neurological, developmental, or behavioral condition has access to every opportunity and resource available to improve their quality of life and reach their highest potential.

Beautiful Butterflies Transitioning, Inc

The purpose of Beautiful Butterflies Transitioning, Inc.

• Specifically Named Diseases

• 7.

Andrews Firefly Fund

A nonprofit that provides crucial support for research and education necessary to accelerate cures for rare genetic diseases that affect children.

• Single Organization Support

• 8.

EPIDERMOLYSIS BULLOSA MEDICAL RESEARCH FOUNDATION

THE PRIMARY PURPOSE OF THE ORGANIZATION IS TO FUND MEDICAL RESEARCH TO FIND A CURE FOR EPIDERMOLYSIS BULLOSA.

• Health Support Services

• 9.

EBLIFESTYLE INC

Epidermolysis Bullosa is a protein deficiency that effects the skin and has a domino effect the rest Empowering The E.