SHINE Syndrome Foundation Inc
DLG4-related Synaptopathy / SHINE Syndrome *Managed by the board of the DLG4 SHINE Foundation A page for people interested in learning more about DLG4-related Synaptopathy / SHINE Syndrome *Managed by the board of the DLG4 SHINE Foundation Our mission is to improve the quality of life for children and families impacted by DLG4 SHINE through supporting collaborative research among international medical professionals, nurturing a family community, and raising worldwide awareness.
ICO
874703593
623
X (Twitter)
204
Address
Pleasant Grove
DLG4-related Synaptopathy | DLG4 SHINE Foundation Learn more about this rare disease how it affects our families and how we39re helping to find treatment. REGISTER WITH DLG4 SHINE WHAT IS A REGISTRY. NEWS Supporting Families While Advancing Research to Find Treatment for DLG4 SHINE DLG4 Synaptopathy or DLG4 SHINEis an ultrarare disease caused by a genetic mutation on the 17th Chromosome. Patients living with DLG4 SHINE typically enduretroublewithSleepDisturbancesHypotoniaIntellectual DisabilitiesNeurological Disorders andEpilepsy thus the name SHINE.
From Social media
News about from their social media (Facebook and X).
Data about organisation
Birth Defects, Genetic Diseases Category
Organisations with similar rank to SHINE Syndrome Foundation Inc in category Birth Defects, Genetic Diseases
187. SHINE Syndrome Foundation Inc
A page for people interested in learning more about DLG4-related Synaptopathy / SHINE Syndrome *Managed by the board of the DLG4 SHINE Foundation.
This page is to help raise awareness and connect with others that have been diagnosed UBA5 gene mutation.
189. Spina Bifida-Kansas City SBKC
Spina Bifida Kansas City is made up of children and adults with Spina Bifida, as well as parents, gu.
Pleasant Grove
Organisations from SHINE Syndrome Foundation Inc
👑 Young Girls Learning to Live PASSIONATELY, PURELY, & FAITHFULLY.
We provide service opportunities for individuals, groups, and businesses wanting to help those suffering from natural disasters, human injustices, and unforeseen tragedies beyond their control.
10. SHINE Syndrome Foundation Inc
A page for people interested in learning more about DLG4-related Synaptopathy / SHINE Syndrome *Managed by the board of the DLG4 SHINE Foundation.
11. John Hancock Charter School
The mission of JHCS is to provide a core foundation and make our students successful learners for life.
12. Pleasant Grove Biking Vikings
This is the page for the Pleasant Grove High School Biking Viking's mountain bike team.
Similar organisations
Similar organisations to SHINE Syndrome Foundation Inc based on mission, location, activites.
Heterotaxy Connection is a nonprofit supporting individuals and families affected by heterotaxy syndrome.
Improving the lives of individuals with cleidocranial dysplasia through Connections, Awareness, Research, Education and Support (CARES).
Similar Organisations Worldwide
Organisations in the world similar to SHINE Syndrome Foundation Inc.
The Luminesce Alliance is a world-leading paediatric research co-operative, established to harness the strengths of its partner organisations to unlock future prevention, treatments and ultimately, cures, for childhood illnesses.
Shine21 is a charity in Yorkshire that is dedicated to empowering parents and enriching the lives of children with Down Syndrome.
A registered charity based in the U.
Interesting nearby
Interesting organisations close by to residence of SHINE Syndrome Foundation Inc
Heterotaxy Connection is a nonprofit supporting individuals and families affected by heterotaxy syndrome.
A non-profit organization supporting children with facial abnormalities on their emotional, physical.
A page for people interested in learning more about DLG4-related Synaptopathy / SHINE Syndrome *Managed by the board of the DLG4 SHINE Foundation.
Improving the lives of individuals with cleidocranial dysplasia through Connections, Awareness, Research, Education and Support (CARES).
Similar social media (827)
Organisations with similar social media impact to SHINE Syndrome Foundation Inc
1 Body Outreach, Inc.
176976. Forget Me Not Rescue of Kern
Forget Me Not Rescue of Kern is a group of like-minded local individuals with the common goal of matching small size dogs and cats in need with low income, home bound, and isolated seniors in our community.
176977. SHINE Syndrome Foundation Inc
A page for people interested in learning more about DLG4-related Synaptopathy / SHINE Syndrome *Managed by the board of the DLG4 SHINE Foundation.
176979. Rubys Clay Studio & Gallery
We're a non-profit ceramic art studio located in the HEART of the Castro district in San Francisco @.
Join us and make a difference for the future!
A brilliant resource for anyone who wants to do good more effectively.
Janet
Eduo connects you to causes that actually matter to you.
Lucy
Eduo is where compassion meets clarity.
Yvette
I work in a nonprofit and listing our organization on Eduo.org helped us reach new audiences and even new volunteers. It’s easy to use and feels built with love.
William
Clean, community-driven, and full of heart — love it.
Catherine
Simple interface, deep purpose. Eduo makes it easy for everyday people to become part of a global community doing good.
Michelle
Sign Up
Please fill in your information. Everything is free, we might contact you with updates (but cancel any time!)
Sign in with GoogleOr
Good News
Linda
2025-10-23
"Exciting news on energy efficiency! 🌍💡 As we face rising energy costs, let's prioritize smart solutions that save money and protect our planet. Together, we can make a positive impact for our communities! #EnergyEfficiency #Sustainability #GoodNews"
New England can't afford to give up on energy efficiency - The Boston Globe
The Boston Globe
Like Comment
