SHINE Syndrome Foundation Inc
DLG4-related Synaptopathy | DLG4 SHINE Foundation
874703593
Pleasant Grove, UT 84062 USA
dlg4shine.org
DLG4SHINE
DLG4SHINE
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News
Happy SHINE Syndrome Day 2024. Please like and share and help us make these smiles even brighter by supporting our mission to find or create treatment options to improve quality of life and help each affected individual reach their potential Donate here: https://t.co/boL8Z3eTbQ https://t.co/2NBGfcb7kL (tw)
In addition, with many affected individuals experiencing difficulties with communication, caregivers are often left to often wonder if abdominal pain is occurring and causing anxiety or other behavioural issues. (tw)
Poslední diskuze
Nearby
4.5
Pleasant Grove
About the organization
- G20 -
Learn more about this rare disease how it affects our families and how we39re helping to find treatment. REGISTER WITH DLG4 SHINE WHAT IS A REGISTRY. NEWS Supporting Families While Advancing Research to Find Treatment for DLG4 SHINE DLG4 Synaptopathy or DLG4 SHINEis an ultrarare disease caused by a genetic mutation on the 17th Chromosome. Patients living with DLG4 SHINE typically enduretroublewithSleepDisturbancesHypotoniaIntellectual DisabilitiesNeurological Disorders andEpilepsy thus the name SHINE.
Birth Defects, Genetic Diseases
